LymeNet Flash: Best Place To Donate $$ 4 Lyme Research??

This is topic Best Place To Donate $$ 4 Lyme Research?? in forum General Support at LymeNet Flash.

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Posted by sickoflyme07 (Member # 13368) on :

Hello everyone,

I am tossing around an idea to raise $$ for Lyme research and better awareness.

Where is the TOP best place to submit the donations/funds to in case it is successful?? The PROPER place for research is what I am looking for.

I am fairly new w/ the dx and am astonished at how poorly we as victims are being treated in this country.

Any other ideas are also welcome. I want to do something proactive.

I signed the petition, but I still feel like I need to do more.

Posted by Ann-OH (Member # 2020) on :

The new Lyme research center at Columbia University is the best I know. If you go to

http://cpmcnet.columbia.edu/dept/nyspi/index.html
there is a link where you can learn about donating.

How nice of you!
Ann - OH

Posted by Lymetoo (Member # 743) on :

Posted by bettyg (Member # 6147) on :

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=8;t=000885

[Wink]

Posted by sometimesdilly (Member # 9982) on :

hi Sick of Lyme!

there are a number of Marylanders who post here on Lymenet, including me- i live in Baltimore.

Maryland is a good place to become active about Lyme; the federal government is nearby,as is Johns Hopkins, one of the premier national peddlers of junk Lyme research.

defeated last year, our state representatives are gearing up again to pass a bill legitimizing the dreadful IDSA treatment guidelines. there is a lot going on and a lot to do.

i understand that you are thinking about fundraising. Please send me a PM if you would consider helping raise funds to keep Dr J in CT (our only pediatric Lyme specialist)in practice.

In any case, i'd love to hear from you! Welcome!

(added: duh. forgot to tell you to please check my post in medical about Marylanders' taking action)

Dilly

[ 01. October 2007, 10:04 AM: Message edited by: sometimesdilly ]

Posted by sickoflyme07 (Member # 13368) on :

Thank you everyone for the guidance!!

I pray I can use this brain of mine and do something proactive, unique and creative to boost the awareness and the deliver much needed funds to research.

I also have 5 kids. It is my biggest fear in this world to ever hear a doctor tell me one of them has this disease.

Something MUST be done now to stop all of the run around, outdated protocols, and to get the govt. to WAKE up.

After everything I have gone thru with this disease (so far)...you bet I want to protect the future of my kids as well as everyone else in this country.

I have a small idea I am pondering. Hope my brain can come thru from the fog enough to bring it to life.

Thank you for the referrals everyone and for the moral support.

Posted by CaliforniaLyme (Member # 7136) on :

The Doctor J defense fund!!!!!!!!!!!

It's not research in a lab, but it will keep HIS research alive as far as how to treat pediatric TBDs!!!!!!!!!!!!!!!!!!!!!

Posted by pmerv (Member # 1504) on :

I've sent $ to Dr. J but I wouldn't say this is the best place to spend your money. I'd say LDA for their research fund - their motto is Find a Cure - or Turn the Corner (or CALDA if you're in California) for their doctor education programs (mentoring and CALDA also has scholarships to go to the conferences). Columbia Lyme Research Center is good, too.
My 2 bits.