sometimesdilly
Frequent Contributor (1K+ posts)
Member # 9982
posted
hi Sick of Lyme!
there are a number of Marylanders who post here on Lymenet, including me- i live in Baltimore.
Maryland is a good place to become active about Lyme; the federal government is nearby,as is Johns Hopkins, one of the premier national peddlers of junk Lyme research.
defeated last year, our state representatives are gearing up again to pass a bill legitimizing the dreadful IDSA treatment guidelines. there is a lot going on and a lot to do.
i understand that you are thinking about fundraising. Please send me a PM if you would consider helping raise funds to keep Dr J in CT (our only pediatric Lyme specialist)in practice.
In any case, i'd love to hear from you! Welcome!
(added: duh. forgot to tell you to please check my post in medical about Marylanders' taking action)
Dilly
[ 01. October 2007, 10:04 AM: Message edited by: sometimesdilly ]
Posts: 2507 | From lost in the maze | Registered: Aug 2006
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I pray I can use this brain of mine and do something proactive, unique and creative to boost the awareness and the deliver much needed funds to research.
I also have 5 kids. It is my biggest fear in this world to ever hear a doctor tell me one of them has this disease.
Something MUST be done now to stop all of the run around, outdated protocols, and to get the govt. to WAKE up.
After everything I have gone thru with this disease (so far)...you bet I want to protect the future of my kids as well as everyone else in this country.
I have a small idea I am pondering. Hope my brain can come thru from the fog enough to bring it to life.
Thank you for the referrals everyone and for the moral support.
Posts: 25 | From MD | Registered: Sep 2007
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
The Doctor J defense fund!!!!!!!!!!!
It's not research in a lab, but it will keep HIS research alive as far as how to treat pediatric TBDs!!!!!!!!!!!!!!!!!!!!!
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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pmerv
Frequent Contributor (1K+ posts)
Member # 1504
posted
I've sent $ to Dr. J but I wouldn't say this is the best place to spend your money. I'd say LDA for their research fund - their motto is Find a Cure - or Turn the Corner (or CALDA if you're in California) for their doctor education programs (mentoring and CALDA also has scholarships to go to the conferences). Columbia Lyme Research Center is good, too. My 2 bits.
-------------------- Phyllis Mervine LymeDisease.org Posts: 1808 | From Ukiah, California, USA | Registered: Aug 2001
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