LymeNet Flash: How can I find a Lyme Discussion Center near where I live in FL?

This is topic How can I find a Lyme Discussion Center near where I live in FL? in forum General Support at LymeNet Flash.

To visit this topic, use this URL:
https://flash.lymenet.org/ubb/ultimatebb.php/topic/3/18818

Posted by ballet1 (Member # 13930) on :

Hi,
I am looking to join a group of some kind to talk about "lyme Disease" and all of it's nasty symptoms,...but, am unsure as to where to go?

Could someone help me or tell me how to find a "group" setting for sufferers of Lyme Disease?

I'm in Florida and in Stuart, but i guess being new and all,--am unsure where else to begin?

Thank you for all of your help--
Sincerely,
Ballet1

Posted by Ann-OH (Member # 2020) on :

Look in "Support Groups" in the menu on the left side of this page. I hope you will find a group or at least a contact in Florida near you there.

In what part of Florida is Stuart? What is a bigger city nearby?

If you post that here, you might find that someone who posts here is near you.

Best Luck!
Ann - OH

Posted by CaliforniaLyme (Member # 7136) on :

All of these are listed here- MANY support groups in Florida!!!
Welcome*)!
*********

~The Bay Area CFIDS/FMS Support Group

~Central Florida Lyme Support

~Eye On Lyme Network (Statewide)

~Florida Lyme Disease Network, Inc. (Statewide)

~LIFE-Lyme (Lyme International Foundation for
Education)

~Lyme Support Group Florida

~Suncoast CFS_FMS_Lyme Support Network (Tampa)
~The Lyme Leading The Lyme Support Group (Orlando)

Posted by just don (Member # 1129) on :

There was a NEW group that tried to form,,,close to you. Hope somebody from there greets you here,,,

otherwise PM me and I can lead you in right direction to SEE if they got off the ground or floundered!! Ill ask!! being --just don-- and 1750 miles away so dont wait for ME to get there

Pardon my manners,,,most forgot,,WELCOME ABOARD!!! Best support and discussion(here) in the whole nation!! We are as close as your keyboard!!

Posted by Tincup (Member # 5829) on :

Welcome!

Also note-

This is the email of a lady running a combo group in Tampa area. Does fibro/Lyme/etc. Might want to check with her about meetings and events.

``````````````````````````````````````````````

There will be a Lyme conference in the Tampa area come January 2008, I believe? Not sure of date but will try to find someone with more details. You might want to go for the education and/or to meet folks? Especially since the conferences don't happen too often down your way.

```````````````````````````````````````````````

Also... contact Dr. James Schaller and ask if there are any groups he may know about in the area. Or Google his name and visit his web site to get contact information for him.

Tell him Tincup said to contact him for help.

``````````````````````````````````````````````

Good luck and keep the Florida borders cleared out and the doors to the sunshine state open. I am headed your way soon to get out of this stupid snow!!!

Sunshine here I come!

[Big Grin]

Posted by Tincup (Member # 5829) on :

Well ding dong what the bell?

I put the email there for the first suggestion I had above... and it isn't showing?

Here it is again.

[email protected]

[Big Grin]

Posted by bettyg (Member # 6147) on :

also, People seeking doctors in certain states might be able to
get help from their state online information and support group. Over 1200
people belong to these state groups. Many of the groups are small
but quite a few have 20 or more people on them.

To find your state group, go to
http://health.groups.yahoo.com/group/statenamelyme

Type your state name and lyme as one word, e.g. newyorklyme

For SC, SD, ND and WY, put a hyphen between the statename
and lyme, e.g. northdakota-lyme

The groups are moderated so you have to apply, and we don't
allow doctor names, but once on the group, you can ask for doctors in a certain area and ask people to email you privately.

Posted by ballet1 (Member # 13930) on :

Hi and Thank you all!,
I do appreciate ALL the information I receive and have received through this website and thru everyone who is diligent, kind , and caring to write to me!

Thank you all very much for your time and help...I really, really, really do appreciate it.

Sincerely,
Ballet1

Posted by Tincup (Member # 5829) on :

Good to know it helped and nice of you to thank folks.

Here is the web site for the Florida conference. Just got it from one of the organizers today and thought of you.

http://www.cme.hsc.usf.edu:80/lyme

I tried to make reservations at a nearby hotel so I could go too... as I can't drive after dark and St. Pete has changed a lot since I was there.

The hotel is one of the most beautiful I've ever seen and I have always wanted to stay there.. at least once in my life time.

HA! Gotta laugh. I actually checked into it and the cost was astronomical... but hey... I CAN dream.. can't I?

It is the old magestic looking pink motel in St. Pete.. which always facinated me when I was young. It is called the Don Ce'sar.. (spelling?)

I actually had picture post cards of it on my fridge years ago just in case Mel Gibson said "Hey, TC, let's get away for a week and go there."

Oh.. time for me to wake up!

Later gator...

[Big Grin]

Posted by Lori Laskaris (Member # 14059) on :

I am the organizer of a suppport group in Tampa, The Tampa Fibromyalgia Meetup Group. The support group is for sufferers of fibromyalgia, chronic fatigue syndrome, chronic pain, arthritis and lyme disease. We do have monthly meetings with guest speakers and within the next few months a second meeting will be added without a speaker so the members can communicate with each other. We presently have over 40 members and the group is continuing to grow daily.

Posted by CaliforniaLyme (Member # 7136) on :

Welcome to LymeNet Lori*)!*)!

I had fibromylagia once and it is all gone!(_(*!!
I am a support group leader, too, in CA!!!
Glad to have you here-
Sincerely,
Sarah