i haven't been on in a long, long time. we've been fighting a rather arduous yet silent battle.. hoping to come with news of inspiration when we could share it.
please meditate our way, or whatever you may do along those lines, for my son and our family.
situations related to lyme, it's aftermath, and tremendous adversity have brought a kid who has nearly overcome severe lyme disease to his knees, yet again. so much pain in his young life to have to bear.
we've lived through the past few years learning to believe that adversity is our friend, never our enemy. my wish is that everyone facing this disease can learn that, which we have learned, as this lesson had transformed our lives.
yet a major blow leaves us with little or no faith in this at the moment. i haven't felt this way in many years.
we need spiritual intervention and hope.
what's happened now feels so much more out of our control than the lyme, as difficult as that may be to comprehend. sorry to be so mysterious. i just can't say what. just that it's very extreme, and i'm not sure if this post is in sheer desperation or just retreating to a familiar comfort zone, probably both. i do know that many people here have helped us through in years past.
despite absence on this board, our thoughts have been with you all and doctor jones, everyday.
take good care,
mo
Posted by bettyg (Member # 6147) on :
mo, i've been wondering for ages where you were since the protests last nov! i keep meaning to ask folks, and then i forget; darn lyme!
mo, you, your son, and family are in my thoughts and prayers that you can overcome this lyme crisis and other things going on in your life right now!
may you kick it in the butt again, and may God interveve during your FOOTPRINTS IN THE SAND WALK!
i know you are really anxious, etc., now, but if you MIGHT take 5-10 minutes and write a letter to conn. medical board on behalf on dr. jones since you have i assume an UNDER AGE 18 son with lyme, please do so.
here's all the details with 2 EXAMPLE LETTERS: LYME PATIENTS AND SUPPORT GROUP ONE AT TOP.
below that are all letters copied to the board at this time. dec. 18 is the FINAL DECISION for dr. jones!
DILLY is a lyme patient and has a very touching one.
meanwhile, consider yourself being prayed for and WELCOME BACK MO! Posted by Geneal (Member # 10375) on :
Sending you prayers and Angels to hold and comfort your son and you.
Believe.
Hugs,
Geneal
Posted by shazdancer (Member # 1436) on :
My thoughts and prayers are with you and yours, Mo.
I hate this d*** disease.
Posted by treepatrol (Member # 4117) on :
I hope&pray this gets settled for you mo
Posted by CaliforniaLyme (Member # 7136) on :
I will pray too!!!
Posted by minoucat (Member # 5175) on :
Mo, I've been missing you on the board.
I know how gallantly and lovingly you've struggled to help your children overcome this life-smashing illness. I know that you've done and will do everything you can to protect and uphold your son.
My prayers and hopes are with you all.
Posted by Pocono Lyme (Member # 5939) on :
Keep the strength to fight the fight.
Hugs and Prayers for you and your son.
Posted by kam (Member # 3410) on :
Praying things are MO better sooon. Posted by Lymetoo (Member # 743) on :
OH, I am so sorry to hear this. I think of you often and I know the struggles you've had.
I'm sorry all of you are suffering so much. Please give everyone a hug for me and let them know they are being prayed for.
Posted by dontlikeliver (Member # 4749) on :
Sending good vibes that things will take a turn for the better.
Hugs DLL
Posted by TS96 (Member # 14048) on :
I'm praying Mo
Gentle hugs to you and the family.
Posted by meg (Member # 22) on :
I'm sorry to hear this Mo--kids don't deserve LD and all it entails. I'm wishing the best for you and your family, and I'll be praying for a quick resolution!
Please keep us posted.
Posted by Mo (Member # 2863) on :
thank you so much.
mo
Posted by hshbmom (Member # 9478) on :
Hi Mo,
I'll be praying for you and your family.
You've been a source of information and encouragement this past year while dealing with my daughter's illness and the related school situation.
I appreciate it.
May your kindness be returned 100 fold.
Posted by hatsnscarfs (Member # 6562) on :
Mo, You've got my prayers too - hats
Posted by heiwalove (Member # 6467) on :
prayers & love to you, mo. i've missed your presence on this board.
Posted by pab (Member # 904) on :
Mo,
I will keep your family in my prayers.
I know how hard it is with sick kids - Jake & Jordan are still struggling.
Posted by kelmo (Member # 8797) on :
Praying for hope, Mo. I know what it's like to care for a child and try to be their visionary for them.
I keep telling my daughter that I see what lies ahead for her, and we just have to endure. Some days, I just have to be silent.
But, I'm just praying for a flicker of hope for you.
Posted by Lymetoo (Member # 743) on :
MO?? How are things going? Posted by Melanie Reber (Member # 3707) on :
Hey there Miss Maureen,
My most heartfelt prayers are with you and Ryan and the rest of the family.
Know that we love you and care, always. Melanie
Posted by trueblue (Member # 7348) on :
Sending hopeful and positive energy your way, Mo!
Posted by merrygirl (Member # 12041) on :
Thinking of you and your family. Sending good vibes your way!
Hang in there.
Melissa Posted by FightFireWithWater (Member # 5781) on :
Mo,
So sorry I didn't see this thread earlier! I am horrified to think of what you are going through. If there is anything we can do.....!
Posted by Mo (Member # 2863) on :
well, things got worse and then worse again. no real holidays in our home this year.
today's a little bit of a turning point, i think, so thanks for all of your thoughts.
i feel like an idiot because i really can't share details right now, besides, aside from privacy concerns and general paranoia on my part - that should be his call.
i never thought we'd face something as hard as the lyme after he finally recovered so well.
then he got totally slammed by the school, and now this.
i can tell it's life crisis mode because i have that "lyme warrior" fashion statement going on everyday; the same three pairs of sweats, no makeup, bloodshot eyes, bad breath..
it's hard to have faith anymore, just too many big blows -- so thanks for all the notes. it's great to touch in with you all again.
hopefully, i'll be back sometime. keep him in your heart when you can. it'll be a rough road ahead.
mo
Posted by bettyg (Member # 6147) on :
mo, thanks for tonight's update on your son/you/family crisis.
you think you've bottomed out, then something else happens worse than what we were contending with!
oh poop on murphy's law! ************************ sending you my prayers still!
Mo, my good memories are of you one 1 yr. ago at LYME RALLY!! IT was great seeing photos of you, hats/scarves, donna in her green boots, etc. i'd talked to you folks for years and then to finally put a face on the words we each pour out on this board to get us thru another hour, day, week, month, and year!
Posted by blackpowder (Member # 13637) on :
Mo, I don't know you personally but I recognize pain when I see it. My prayers will be with you. That sounds so lame but I will stop right now and do it. Disease is bad enough but then
you get hit with something else and wonder how much more you can handle. People tell you God doesn't give you more than you can take but sometimes I wonder if He doesn't overestimate
us. Keep the faith . It still beats the alternative -face it with no faith or hope. Take care of yourself and son.
Posted by AZURE WISH (Member # 804) on :
Hugs to you and your son MO Posted by DakotasMom01 (Member # 14141) on :
Sending prayers to you and your son.
Posted by lymednva (Member # 9098) on :
Prayers for you and your family, Mo, especially your son.
I've lived through one health crisis after another with myself and my son and know how difficult it is to go through.
May God wrap his loving arms around you and give you peace and strength throughout this ordeal. Posted by lymemomtooo (Member # 5396) on :
Mo, I am sorry that you are having problems. Our children have had some parallels but I do not know your circumstance at the moment. You may not even want my interjections.
But my daughter would not be here without constant intervention by someone stronger than us, a brilliant and perceptive LLMD, and a trip to a brain damaged clinic.
The clinic discovered that the infection/s had done brain damage. This is an often overlooked piece of this puzzle, or it has turned out so with us. She had pits or pot marks all thru the brain along with hypoperfusion and elec. things misfiring. There was also damage from 2 head traumas.
Within 2 days, we had hope. Prior to that she was going downhill fast with no hope. Her memory, cognitive skills were horrible. Her actions and words were discouraging.
We have had a major reversal of all. Some cognitive issues, memory and reasoning skills need work.
If Ryan is falling into a downward spiral with things that are happening, this may be an area to research. We spent 3 days in Reston, Va getting evals and help but it was worth every dime of the money that was almost all non-reimbersable.
Posted by hopeful123 (Member # 3244) on :
MO, i am so sorry to learn of your continued struggles. i haven't been around in quite some time.
there is nothing harder than having a sick child.
prayers your way. best, hopeful123
Posted by pab (Member # 904) on :
Mo Posted by MaryL (Member # 11997) on :
Mo, you don't know me, but may you soon see the dim light at the end of your dismal tunnel. Where there is life, there is hope. God bless you. Posted by JRWagner (Member # 3229) on :
MO...my upstate friend!
Please PM me. Perhaps I can help...I have been through it ALL...your hair would curl.
In the meanwhile, my hopes are for your ordeal to end on a high note.
Peace, Love and Wellness, JRW
Posted by Lymester (Member # 5848) on :
Hi Mo,
It has been a while for me too!
Life with lyme seems a lot like you started off with a stove top complete with 4 burners. AFter lyme you may have only 2.5. Then you go to a place in life where one of those burners that was out, decides to work!
Now we're living large!
Then life throws you something and your attention moves from one burner to the other, you're left only one working burner.
The others--well who cares?? when that one burner is singe-ing your eyebrows!!
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