I tested positive for Q fever 18 months ago along with Lyme, RMSF, and other co-infections.
I am curious who else has tested positive for Q fever.
What are your symptoms and treatment. I understand the protcol is 3 years, but what is the reality?
AND where is the best lab for re-testing? Any comments would be greatly appreciated.
I am currently being treated for Lyme, Babs, Bart and Ehrlichea.
Posted by Aligondo Bruce (Member # 6219) on :
I a am curious as to why they tested you for q. this is one of the infections I have contemplated getting tested for, but typically chronic q causes a very limited spectrum of disease, ie, heart valves. of course, we might have bioengineered strains they are pretending don't exist like we see with certain strains of neurolyme in the US.
anyway, did you GP perform the test? or did you have to get specialized testing? Did the doc just throw q out there as a possibility?
Posted by merrygirl (Member # 12041) on :
My doc tested me for Q fever. I was negative. They did it through Quest.....
It is also an airborne thing not only a tick borne illness.
Melissa
Posted by Gypsy Girl (Member # 11072) on :
I got tested for Q fever because I also tested positive for Typhus, Lyme, RMSF and and was out of the country at the time. This was listed as chronic Q-fever though, so not sure how long I actually had it. I may have had it from previous tick bites. The doc said it was a bio strains? hmmm
The doc ignored the Q-fever test and refused Lyme treatment as well at that time. Not a LLMD.
Not really sure of the protocol for treatment because I can't take doxy right now. So I am unsure that I am really hitting the Q fever with my current meds. If I am, thats GREAT!
I have an awesome LLMD and we are working on all aspects. I have so much neuro stuff that's not budging with all my anx and herbs, etc.
Just want to hear how others are doing, if they have Q-fever. I was under the impression that it was an add'l 3 years min outside of the Lyme treatment. Is this incorrect?
I want to be retested. I used Quest first time, any other labs to use besides Quest, or is that Lab ok?
Greatly appreciate your comments!! THANK YOU!
(I am very shy about using Lymenet and still in a awful neuro situation...)
Thanks!
Posted by savebabe (Member # 9847) on :
According to my llmd, many people on Staten Island have been showing posisitive for Q-fever. According to him the CDC has been calling his office often.
We can all thank the government for this one again. Posted by Aligondo Bruce (Member # 6219) on :
quote:Originally posted by Gypsy Girl: I got tested for Q fever because I also tested positive for Typhus, Lyme, RMSF and and was out of the country at the time. This was listed as chronic Q-fever though, so not sure how long I actually had it. I may have had it from previous tick bites. The doc said it was a bio strains? hmmm
The doc ignored the Q-fever test and refused Lyme treatment as well at that time. Not a LLMD.
Not really sure of the protocol for treatment because I can't take doxy right now. So I am unsure that I am really hitting the Q fever with my current meds. If I am, thats GREAT!
I have an awesome LLMD and we are working on all aspects. I have so much neuro stuff that's not budging with all my anx and herbs, etc.
Just want to hear how others are doing, if they have Q-fever. I was under the impression that it was an add'l 3 years min outside of the Lyme treatment. Is this incorrect?
I want to be retested. I used Quest first time, any other labs to use besides Quest, or is that Lab ok?
Greatly appreciate your comments!! THANK YOU!
(I am very shy about using Lymenet and still in a awful neuro situation...)
Thanks!
If I recall correctly, the testing for chronic q is somewhat different from testing for acute q.
Q fever is a rickettsia. Flouroquinolones and some macrolides are also effective.
Posted by Gypsy Girl (Member # 11072) on :
Thank you Aligondo Bruce for the anx info.
So it seems that Levaquin and Zith would be good for this. Yeah! I'm so happy - that eases my mind alot!
Savebabe - Staten Isl.? hmm so I wasn't too far away, CT and NJ. go figure! Thanks for the insight.
Posted by Gypsy Girl (Member # 11072) on :
One more thing... Did you say chronic and acute is tested differently?
I had both tested at the same time, 2 seperate results. Acute was neg. and chronic/ Phase II was positive. It was actually done by LabCorp. (not Quest)
I had other rickettsia tests, RMSF done by Quest, 2 times, it was done 2 weeks apart and positive both times. That was also tested the same time as the Q-fever test.
Could this be true then that I had/have both?
And is there a different lab to use? ANyone know about this? Or does it even matter??
Posted by map1131 (Member # 2022) on :
I just read on tick illness website that Q fever is a cousin of rickettsia. I was tested today for both. Won't know until Dec 31st for follow up appt.
5 large tubes of blood and urine speciman today. Went to my Internist and had a whole list of stuff I wanted tested for since I've had more tick and spider bites in the last 2 yrs than anyone that avoids tick places should have.
Is only Lab Corp doing lab work, but with lyme positve from Igenex in 02, maybe I will find the rest of my lyme & company story. I had to sign a piece of paper stating that Medicare doesn't pay for bartonella & HHV-6 because they are considered experimental testing. I'll fight Medicare if they don't pay after my primary insurer.
Experimental my A*#! I have a known vector borne illness and there's nothing experimental about this.
Pam
Posted by Gypsy Girl (Member # 11072) on :
Pam -
Hope you can get some answers with the tests you did today!
FYI: Igenex has a new Rickettesia test:
RICKETTSIA 975 TICK TEST by PCR for Rickettsia 87798
It always seems so long to get the answers.... Wishing you Luck!
Posted by Gypsy Girl (Member # 11072) on :
oops! that sounded wrong. not from the lab, I meant just lyme answers in general... nothing instant is what I meant. oh well.
Posted by LymeCFIDSMCS (Member # 13573) on :
I really want to get tested for Q Fever. Studies have followed people with acute fever into the chronic stage, and a number of them go on to develop CFIDS (which I have had for fifteen years) and endocarditis (many of my worst symptoms are cardiac). So I know chronic Q fever *can* look just like myalgic encephalomyelitis/chronic fatigue syndrome.
It's my understanding that the chronic form almost always involves the heart -- is this correct? Also, does anyone know about prevalence in other parts of the US?
In my Google research, I did see quite a bit about bioweapons testing involving Q Fever.
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