posted
I a am curious as to why they tested you for q. this is one of the infections I have contemplated getting tested for, but typically chronic q causes a very limited spectrum of disease, ie, heart valves. of course, we might have bioengineered strains they are pretending don't exist like we see with certain strains of neurolyme in the US.
anyway, did you GP perform the test? or did you have to get specialized testing? Did the doc just throw q out there as a possibility?
Posts: 523 | From Stillwater,OK,USA | Registered: Sep 2004
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merrygirl
Frequent Contributor (1K+ posts)
Member # 12041
posted
My doc tested me for Q fever. I was negative. They did it through Quest.....
It is also an airborne thing not only a tick borne illness.
Melissa
Posts: 3905 | From USA | Registered: May 2007
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posted
I got tested for Q fever because I also tested positive for Typhus, Lyme, RMSF and and was out of the country at the time. This was listed as chronic Q-fever though, so not sure how long I actually had it. I may have had it from previous tick bites. The doc said it was a bio strains? hmmm
The doc ignored the Q-fever test and refused Lyme treatment as well at that time. Not a LLMD.
Not really sure of the protocol for treatment because I can't take doxy right now. So I am unsure that I am really hitting the Q fever with my current meds. If I am, thats GREAT!
I have an awesome LLMD and we are working on all aspects. I have so much neuro stuff that's not budging with all my anx and herbs, etc.
Just want to hear how others are doing, if they have Q-fever. I was under the impression that it was an add'l 3 years min outside of the Lyme treatment. Is this incorrect?
I want to be retested. I used Quest first time, any other labs to use besides Quest, or is that Lab ok?
Greatly appreciate your comments!! THANK YOU!
(I am very shy about using Lymenet and still in a awful neuro situation...)
Thanks!
Posts: 19 | From woods | Registered: Jan 2007
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savebabe
Frequent Contributor (1K+ posts)
Member # 9847
posted
According to my llmd, many people on Staten Island have been showing posisitive for Q-fever. According to him the CDC has been calling his office often.
We can all thank the government for this one again. Posts: 1603 | From ny | Registered: Aug 2006
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quote:Originally posted by Gypsy Girl: I got tested for Q fever because I also tested positive for Typhus, Lyme, RMSF and and was out of the country at the time. This was listed as chronic Q-fever though, so not sure how long I actually had it. I may have had it from previous tick bites. The doc said it was a bio strains? hmmm
The doc ignored the Q-fever test and refused Lyme treatment as well at that time. Not a LLMD.
Not really sure of the protocol for treatment because I can't take doxy right now. So I am unsure that I am really hitting the Q fever with my current meds. If I am, thats GREAT!
I have an awesome LLMD and we are working on all aspects. I have so much neuro stuff that's not budging with all my anx and herbs, etc.
Just want to hear how others are doing, if they have Q-fever. I was under the impression that it was an add'l 3 years min outside of the Lyme treatment. Is this incorrect?
I want to be retested. I used Quest first time, any other labs to use besides Quest, or is that Lab ok?
Greatly appreciate your comments!! THANK YOU!
(I am very shy about using Lymenet and still in a awful neuro situation...)
Thanks!
If I recall correctly, the testing for chronic q is somewhat different from testing for acute q.
Q fever is a rickettsia. Flouroquinolones and some macrolides are also effective.
Posts: 523 | From Stillwater,OK,USA | Registered: Sep 2004
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So it seems that Levaquin and Zith would be good for this. Yeah! I'm so happy - that eases my mind alot!
Savebabe - Staten Isl.? hmm so I wasn't too far away, CT and NJ. go figure! Thanks for the insight.
Posts: 19 | From woods | Registered: Jan 2007
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posted
One more thing... Did you say chronic and acute is tested differently?
I had both tested at the same time, 2 seperate results. Acute was neg. and chronic/ Phase II was positive. It was actually done by LabCorp. (not Quest)
I had other rickettsia tests, RMSF done by Quest, 2 times, it was done 2 weeks apart and positive both times. That was also tested the same time as the Q-fever test.
Could this be true then that I had/have both?
And is there a different lab to use? ANyone know about this? Or does it even matter??
Posts: 19 | From woods | Registered: Jan 2007
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
I just read on tick illness website that Q fever is a cousin of rickettsia. I was tested today for both. Won't know until Dec 31st for follow up appt.
5 large tubes of blood and urine speciman today. Went to my Internist and had a whole list of stuff I wanted tested for since I've had more tick and spider bites in the last 2 yrs than anyone that avoids tick places should have.
Is only Lab Corp doing lab work, but with lyme positve from Igenex in 02, maybe I will find the rest of my lyme & company story. I had to sign a piece of paper stating that Medicare doesn't pay for bartonella & HHV-6 because they are considered experimental testing. I'll fight Medicare if they don't pay after my primary insurer.
Experimental my A*#! I have a known vector borne illness and there's nothing experimental about this.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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posted
oops! that sounded wrong. not from the lab, I meant just lyme answers in general... nothing instant is what I meant. oh well.
Posts: 19 | From woods | Registered: Jan 2007
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posted
I really want to get tested for Q Fever. Studies have followed people with acute fever into the chronic stage, and a number of them go on to develop CFIDS (which I have had for fifteen years) and endocarditis (many of my worst symptoms are cardiac). So I know chronic Q fever *can* look just like myalgic encephalomyelitis/chronic fatigue syndrome.
It's my understanding that the chronic form almost always involves the heart -- is this correct? Also, does anyone know about prevalence in other parts of the US?
In my Google research, I did see quite a bit about bioweapons testing involving Q Fever.
Posts: 929 | From Massachusetts | Registered: Oct 2007
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