LymeNet Flash: We Walk the Line...

This is topic We Walk the Line... in forum General Support at LymeNet Flash.

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Posted by Monica922 (Member # 13496) on :

My family is out Christmas shopping at Wal-mart for me. I asked for really loose socks because my neuropathy is still killing me. I am in one of those crying moods where I want my life back!

I layed in bed when I came home from my IV and watched Walk the Line about Johnny Cash. I think I am stuck in the Ring of Fire song he sings about..I am not even joking..sad part. [bonk]

I know it is the end of week 4 for IV Rocephin and I need to be patient. This has never been one of my assets [Smile]

I just seem to be having one of those great painful days with jaw pain, fire, pain all over, and depression. What a great disease!

Monica

Posted by Robin123 (Member # 9197) on :

I know -- it sucks. Hang in there...

I really liked your Dr J letter to the governor. How personal can you get when you say you're both in the same neighborhood and there's ticks?!

Posted by Monica922 (Member # 13496) on :

Thanks Robin...let us both hope it makes her think. I am okay...I just have horrible bouts of despair every once in a while.

I still think they should walk into the meetings this week with T-shirts saying...We are TICKED OFF About LYME. [Smile]

Posted by bettyg (Member # 6147) on :

monica, [group hug]

so sorry to read of your pain and depression!

yes, i loved your letter to governor, etc., and also about sending copies to AG BLUMENTHAL for his investigation!.

now you have topped that too about a great idea about I'M TICKED OFF ABOUT LYME! i really like it!

best wishes; patience isn't any of our virtue, but we learn to acquire it. hang in there; better days ahead! [group hug]

Posted by FightFireWithWater (Member # 5781) on :

Monica,

I am so very sorry that you are suffering so much pain and depression.

I know what it is like to feel that one's body is on fire and to cry in extreme pain and despair at not knowing if it will stop.

All that I can tell you is that that pain did stop for me, thanks to my wonderful LLMDs. I know that many others have also had the same successful result with adequate treatment. Everyone is different in terms of time that it requires.

Very best wishes!

Posted by Monica922 (Member # 13496) on :

Thanks, trust me that is what is keeping me going right now.
This lymenet has become a life line for me.