This campaign is targeting your Governor, members of your State Senate, members of your State House, the President of the United States, members of the US Senate and members of the US House of Representatives.
Thank you All.
Best Regards, Eric
[ 19. January 2009, 02:59 PM: Message edited by: eric555 ]
Posted by liesandmorelies (Member # 15323) on :
Hi Eric,
thanks for doing this.
I just went there. It was so easy to set up and they automatically send letters out on our behalf to local, state and national leaders.
I had letters sent out to Diane Feinstein, Barbara Boxer, Arnold, Bush, Wally herger.
All I had to do is sign up and push the button to take action and they send the pre-scripted letter. Very Easy.
Come on everyone join in. We are up to "71" now!!!!
Elizabeth
Posted by eric555 (Member # 18343) on :
Ahhhhhhh, Good for you, and you're very welcome it is my pleasure...
Don't it Feel Good to Take an Action in something as Important as this ???
Oh, and you can also Edit my letter if you wish prior to sending.
Best regards, Eric
Posted by bettyg (Member # 6147) on :
now 73 !!
Posted by eric555 (Member # 18343) on :
Wow, cool, glad to see it working and people participating...
Thank You.
Posted by Connections (Member # 18746) on :
...74
Thanks Eric. It's great to see ACTION being taken.
God Bless!
Posted by DeafFromLyme (Member # 18795) on :
Hi Eric
I am not 100% sure I did it correctly but I hope so. Its great that you have done that for us!
Especially in Massachusetts, where we/I can't get ANY help with ANYthing!
I have a disabled son and he gets the BARE minimum of services, meaning things like PT, OT, Nursing for his O2 requirements, etc...
And its all because of Insurance and gov't! It makes me sick!
Thanks Again!
Posted by Robin123 (Member # 9197) on :
Up, up and away! Good job, Eric!! Posted by sandiet (Member # 15916) on :
Great job, Thanks. Sandie
Posted by sandiet (Member # 15916) on :
Great job, Thanks. Sandie
Posted by eric555 (Member # 18343) on :
You people really bring tears to my eyes, in a good way ofcourse...
We should all be thankful to eachother for taking part.
God bless you for taking action on this very important matter for us all, as one day this will be over with, and Now is Our Chance to Be Heard...
And I truly wish you All the very best with your Child, and truly feel for you.
Hope your son gets well soon.
My Heart Goes Out To You.
(85 people had sent letters out so far, and thats about 10 letters per person, lets get more, much more...)
Best regards, Eric
Posted by Larkspur (Member # 5131) on :
I sent - thanks for doing this
Posted by Robin123 (Member # 9197) on :
87...
Instead of a countdown, we're going to do a count-up...
What I like about this also, Eric, is that letters are generated to all our reps. Good set-up.
Posted by Zebco 33 (Member # 18376) on :
Dear Eric....Thank you so much for all your hard work...You made it so easy for me and my friends and family. You angel you. grateful, Connie Posted by LLYME (Member # 18687) on :
Be sure to add TURN THE CORNER FOUNDATION as one of your supported non-profits on the change.ord site!
eric555, Maybe you can add this link to your post also.
Posted by eric555 (Member # 18343) on :
zebco,
it is my pleasure and very glad to be of service and help with this horrible disease.
hopefully we can get more awareness with this by our elected officials and possibly some actual results...
lets get everyone involved...
best regards, eric
Posted by Need Lots of Help (Member # 18603) on :
Eric,
256 now!!
I did my part!!
Shalome
Posted by Need Lots of Help (Member # 18603) on :
Also, my state representative actually lives here locally. I called him on his home phone.
I wonder if he will call me back, and I don't really know what to say if he does...
When I talk about how sick I am, I tend to cry, and I am scared I won't be taken seriously.
Thanks, Shalome
Posted by eric555 (Member # 18343) on :
llyme,
i will try and see what i can do...
hopefully i can make some revisions there on their web site, if they allow me to do so.
and a HUGE thanks to all for participating in our cause for this horrible disease we all share.
i already got some really cool replies from some major elected officials, who actually seem to care and understand about all this.
the more people join and take action the better, get everyone involved...
(by the way you may actually edit my letter as to your specific needs, or just simply copy and paste my actual entire Full Main objective Original, into your actual letter thats being sent out)
A HUGE Thanks to ALL !!!
best regards, eric
Posted by eric555 (Member # 18343) on :
need lots of help,
yea we may actually be heard...
260 Now. (thats 260 people at about 6 - 10 letter each)
Very very Good.
Thank You.
Best regards, Eric
Posted by carly (Member # 14810) on :
Thanks, Eric!! I have some friends and family receiving their links right now.
Hopefully they'll just keep passing it on...
Posted by eric555 (Member # 18343) on :
Thank You Carly...
This is a Fight for Us All !!!
Best regards, Eric
Posted by bettyg (Member # 6147) on :
copying the below here from mdjunction.org LYME board.... written by beauty, tawnee, moderator
beauty, did you go to ERIC'S post and then just INSERTED "YOUR" NEW LETTER? this way your reply counted towarded his LYME subject.
beauty, your new letter is outstanding, and as a severe NEURO LYME patient of 39 years, i'm going to break it up so we can read and comprehend it ok.
i'd also like to recommend to members here to click on ERIC'S LYME POST, and then insert beauty's wonderfully, thoughtfully written letter!!
Lyme Disease Pandemic
I am contacting you today because of an urgent and crucial matter: Lyme Disease.
It is pandemic and people are suffering due to poor recognition, uneducated & unwilling medical professionals, unreasonable insurance coverage, inadequate treatment protocols, and ultimately, neglect.
Government action is required, and that response needs to be in the forms of
providing the means for better awareness,
more reliable testing,
individualized and longer treatments,
a stronger understanding of the disease by society in general,
specific & required training of doctors and the entire medical community,
and we need more clinical studies and grant financing to further indispensable research.
These things are not an option, rather, they are imperative.
Lyme Disease is excrutiatingly painful and debilitating.
Left untreated, it can cause it's sufferers irreversable damage including blindess, deafness, paralysis, deformities, brain damage and even death.
Lyme is a relentless enemy demanding every ounce of it's host's energy, producing crippling languor and unrelenting pain & agony.
It is an incapacitating affliction that depletes the entire body of valuable nutrients causing vitamin & mineral deficiencies, significant decreases in essential enzymes, causes blood sugar instability and seriously bankrupts vital hormones that are paramount to our well being.
It drastically weakens our immune systems and robs us of the ability to repair & heal from wounds and other infections.
There are {Betty changed this ..over 300} conditions related to Lyme Disease.
Compelling evidence shows that Lyme is being found to be the underlying cause in an alarming number of medical cases such as:
Chronic Fatigue Syndrome, Fibromayalgia, Bell's Palsy, Parkinsons, Epilepsy, Lupus, Multiple Sclerosis, Scleroderma, Rheumatoid Arthritis, Hypothyroidism, Meningitis, Dementia, and Alzheimer's Disease, (Betty adding and majority of MENTAL illnesses), just to name a few.
Countless physicians have been abhorrently tormented, degraded & demoralized for their attempts in treating suffering Lyme Disease patients, as have scientists for their fundamental research because of a lack of bureaucratic acceptance that this disease not only exists, but is a phenomenal and devestating invader.
Lyme disease is not up for debate.
People are wasting away while the CDC & IDSA look the other way.
Because of the guidelines that are currently in place, millions of people, like myself, continue to suffer going undiagnosed, misdiagnosed or for being blatantly refused to even be seen by medical practitioners who swore a hippocratic oathe to do no harm yet their idleness does just that. Such is in my case.
I was both mocked and evaded despite the fact that I met CDC guidelines for a clinical diagnosis of Lyme, complete with evidence of a erythema migran.
I was told Lyme does not exist in my state, regardless of proof that it is, and not to come back if it had to do with Lyme Disease.
Lyme is an insidious disease. I urge you to view the documentary "Under Our Skin" by Open Eye Pictures, and then lend us your voice in the legislation.
Your citizens are crying out to their governent for help. What will your response be?
again, beauty; what a powerful story you wrote on behalf of yourself and our entire lyme community. well done my new friend! xox
BettyG, iowa activist
MOMMY MCMANN, sp, at the moment, i can't get to my hug from you, but the above link in TOP POST from pammie is what you need to sign this petition.
it's a LETTER PETITION, and i suggest using beauty's well-written letter when you click on ERIC'S LYME POST OK! that way your reply goes on eric's post so we have CUMULATIVE TOTAL RUNNING of every time someone sends their letter/vote.
again, it goes to YOUR STATE'S FEDERAL/STATE HOUSE REPS AND SENATORS!
i've been hearing back from my STATE senators/house reps saying to contact my DC sen/house reps. i just inform them it's an online petition, and i didn't make the selection of folks; they did.
NOW, PLEASE GO AND SEND YOUR LETTERS FOLKS. WE HAVE UNTIL APRIL 13, i believe! but 800 votes from THIS BOARD would be phenomenal !! GO MD JUNCTION MEMBERS!
BettyG, iowa activist
ps....tawnee just posted 256 SIGNATURES now on eric's initial post.
so beauty's letter is another one you could copy and add to ERIC'S petition he started there.
thanks gang! betty xox ************
Posted by eric555 (Member # 18343) on :
as of now, over 300 people have sent the letters out !!!!!
(thats about 6 - 10 letters each person)
Posted by Robin123 (Member # 9197) on :
I just checked - 370 sigs now! This is going fast! Must be something in the water...jus' kiddin'- Eric, you are to be commended for having started this action! Keep signing, everyone...
Posted by eric555 (Member # 18343) on :
Just you having to thank me is more than enough,
besides I did this for us all, as we are all in the same boat together...
Im just glad to see it working and people actually acting upon it and our voices clearly being heard by the elected officials.
So we should all be thankfull to eachother for taking the time and part.
When I was starting all this I was really sick with a bad cold/flu, so it was not easy, plus my other infections which ofcourse did not help...
But ofcourse I do very much appreciate the kind words.
Thank you.
Best regards, Eric
Posted by FancyRatFan (Member # 3088) on :
up
Posted by Ocean (Member # 3496) on :
Just saw this and sent mine in. GREAT JOB ERIC!!!
You are looking out for all of us =)
take care, Ocean
Posted by imagine2 (Member # 3136) on :
Thanks so much, Eric! Six of us sent ours in a few days ago. GREAT JOB everyone!!
Posted by ThatColorGreen (Member # 16016) on :
awesome!! last i checked it has 623!!
i think everyone on this site is doing their own huge part with educating people on this disease!
~Green~
Posted by eric555 (Member # 18343) on :
Thank You, Thank You, Thank You, to ALL !!!
Best Regards, Eric
Posted by eric555 (Member # 18343) on :
Someone just emailed me from the state of CT, and says that now theres actually some type of action being done and that they are fully aware of the problem with Lyme disease and its severity...
There will be new revisions and new guidelines set forth for the treatments and testing.
Seems something is working.
Posted by bettyg (Member # 6147) on :
eric,
are you talking about CONN'S LYME BILL that is being discussed or on NATIONAL level??
Posted by eric555 (Member # 18343) on :
i don't know...
heres a copy of the email i was just sent.
Dear Sir:
Thank you for your email regarding support for Lyme Disease research. The Public Health Committee has legislative proposals being considered this session on treatment. To access copies of any legislation on Lyme Disease please visit the Connecticut General Assembly website at www.cga.ct.gov.
Again, thank you for contacting me.
Sincerely,
C
Posted by bettyg (Member # 6147) on :
ERIC, it's CONN.'S STATE LYME BILL they are referring to, but thanks for clearing this up.
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