This campaign is targeting your Governor, members of your State Senate, members of your State House, the President of the United States, members of the US Senate and members of the US House of Representatives.
Thank you All.
Best Regards, Eric
[ 19. January 2009, 02:59 PM: Message edited by: eric555 ]
Posts: 570 | From philadelphia, pa | Registered: Dec 2008
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-------------------- "We must be willing to get rid of the life we've planned, so as to have the life that is waiting for us" - e.m. forster Posts: 921 | From PA | Registered: Jan 2004
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Instead of a countdown, we're going to do a count-up...
What I like about this also, Eric, is that letters are generated to all our reps. Good set-up.
Posts: 13171 | From San Francisco | Registered: May 2006
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posted
Dear Eric....Thank you so much for all your hard work...You made it so easy for me and my friends and family. You angel you. grateful, Connie Posts: 145 | From Paris, Tn. | Registered: Dec 2008
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hopefully i can make some revisions there on their web site, if they allow me to do so.
and a HUGE thanks to all for participating in our cause for this horrible disease we all share.
i already got some really cool replies from some major elected officials, who actually seem to care and understand about all this.
the more people join and take action the better, get everyone involved...
(by the way you may actually edit my letter as to your specific needs, or just simply copy and paste my actual entire Full Main objective Original, into your actual letter thats being sent out)
A HUGE Thanks to ALL !!!
best regards, eric
Posts: 570 | From philadelphia, pa | Registered: Dec 2008
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Best regards, Eric
Posts: 570 | From philadelphia, pa | Registered: Dec 2008
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bettyg
Unregistered
posted
copying the below here from mdjunction.org LYME board.... written by beauty, tawnee, moderator
beauty, did you go to ERIC'S post and then just INSERTED "YOUR" NEW LETTER? this way your reply counted towarded his LYME subject.
beauty, your new letter is outstanding, and as a severe NEURO LYME patient of 39 years, i'm going to break it up so we can read and comprehend it ok.
i'd also like to recommend to members here to click on ERIC'S LYME POST, and then insert beauty's wonderfully, thoughtfully written letter!!
Lyme Disease Pandemic
I am contacting you today because of an urgent and crucial matter: Lyme Disease.
It is pandemic and people are suffering due to poor recognition, uneducated & unwilling medical professionals, unreasonable insurance coverage, inadequate treatment protocols, and ultimately, neglect.
Government action is required, and that response needs to be in the forms of
providing the means for better awareness,
more reliable testing,
individualized and longer treatments,
a stronger understanding of the disease by society in general,
specific & required training of doctors and the entire medical community,
and we need more clinical studies and grant financing to further indispensable research.
These things are not an option, rather, they are imperative.
Lyme Disease is excrutiatingly painful and debilitating.
Left untreated, it can cause it's sufferers irreversable damage including blindess, deafness, paralysis, deformities, brain damage and even death.
Lyme is a relentless enemy demanding every ounce of it's host's energy, producing crippling languor and unrelenting pain & agony.
It is an incapacitating affliction that depletes the entire body of valuable nutrients causing vitamin & mineral deficiencies, significant decreases in essential enzymes, causes blood sugar instability and seriously bankrupts vital hormones that are paramount to our well being.
It drastically weakens our immune systems and robs us of the ability to repair & heal from wounds and other infections.
There are {Betty changed this ..over 300} conditions related to Lyme Disease.
Compelling evidence shows that Lyme is being found to be the underlying cause in an alarming number of medical cases such as:
Chronic Fatigue Syndrome, Fibromayalgia, Bell's Palsy, Parkinsons, Epilepsy, Lupus, Multiple Sclerosis, Scleroderma, Rheumatoid Arthritis, Hypothyroidism, Meningitis, Dementia, and Alzheimer's Disease, (Betty adding and majority of MENTAL illnesses), just to name a few.
Countless physicians have been abhorrently tormented, degraded & demoralized for their attempts in treating suffering Lyme Disease patients, as have scientists for their fundamental research because of a lack of bureaucratic acceptance that this disease not only exists, but is a phenomenal and devestating invader.
Lyme disease is not up for debate.
People are wasting away while the CDC & IDSA look the other way.
Because of the guidelines that are currently in place, millions of people, like myself, continue to suffer going undiagnosed, misdiagnosed or for being blatantly refused to even be seen by medical practitioners who swore a hippocratic oathe to do no harm yet their idleness does just that. Such is in my case.
I was both mocked and evaded despite the fact that I met CDC guidelines for a clinical diagnosis of Lyme, complete with evidence of a erythema migran.
I was told Lyme does not exist in my state, regardless of proof that it is, and not to come back if it had to do with Lyme Disease.
Lyme is an insidious disease. I urge you to view the documentary "Under Our Skin" by Open Eye Pictures, and then lend us your voice in the legislation.
Your citizens are crying out to their governent for help. What will your response be?
again, beauty; what a powerful story you wrote on behalf of yourself and our entire lyme community. well done my new friend! xox
BettyG, iowa activist
MOMMY MCMANN, sp, at the moment, i can't get to my hug from you, but the above link in TOP POST from pammie is what you need to sign this petition.
it's a LETTER PETITION, and i suggest using beauty's well-written letter when you click on ERIC'S LYME POST OK! that way your reply goes on eric's post so we have CUMULATIVE TOTAL RUNNING of every time someone sends their letter/vote.
again, it goes to YOUR STATE'S FEDERAL/STATE HOUSE REPS AND SENATORS!
i've been hearing back from my STATE senators/house reps saying to contact my DC sen/house reps. i just inform them it's an online petition, and i didn't make the selection of folks; they did.
NOW, PLEASE GO AND SEND YOUR LETTERS FOLKS. WE HAVE UNTIL APRIL 13, i believe! but 800 votes from THIS BOARD would be phenomenal !! GO MD JUNCTION MEMBERS!
BettyG, iowa activist
ps....tawnee just posted 256 SIGNATURES now on eric's initial post.
so beauty's letter is another one you could copy and add to ERIC'S petition he started there.
posted
I just checked - 370 sigs now! This is going fast! Must be something in the water...jus' kiddin'- Eric, you are to be commended for having started this action! Keep signing, everyone...
Posts: 13171 | From San Francisco | Registered: May 2006
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posted
Thanks so much, Eric! Six of us sent ours in a few days ago. GREAT JOB everyone!!
Posts: 677 | From Virginia | Registered: Sep 2002
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posted
Someone just emailed me from the state of CT, and says that now theres actually some type of action being done and that they are fully aware of the problem with Lyme disease and its severity...
There will be new revisions and new guidelines set forth for the treatments and testing.
Seems something is working.
Posts: 570 | From philadelphia, pa | Registered: Dec 2008
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bettyg
Unregistered
posted
eric,
are you talking about CONN'S LYME BILL that is being discussed or on NATIONAL level??
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Thank you for your email regarding support for Lyme Disease research. The Public Health Committee has legislative proposals being considered this session on treatment. To access copies of any legislation on Lyme Disease please visit the Connecticut General Assembly website at www.cga.ct.gov.
Again, thank you for contacting me.
Sincerely,
C
Posts: 570 | From philadelphia, pa | Registered: Dec 2008
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bettyg
Unregistered
posted
ERIC, it's CONN.'S STATE LYME BILL they are referring to, but thanks for clearing this up.
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The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
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