Alright, so here it is! I am pretty pleased with it. There were a few mistakes, but nothing real serious! The only thing I wish is that they had written about the poor testing methods! She didn't end up putting any websites in, which kind of stinks, but oh well!
Also, in the 'real' hardcopy version. She used a lot of space for how to properly remove a tick, where ticks like to hide on the body and the size of an actual deer tick compared to a dime.
I had also asked her to put in my e-mail address, but that also got nixed.
Over all I'm pretty happy with it.
Oh and on the front page of the paper, it says, in pretty big words on the left side, "Madison Woman has to wait 13 years for a Diagnosis!"
So hopefully people will see it and want to read it!
If this link doesn't work, just use the www.mansfieldnewsjournal.com and then find the article under Lifestyle part.
Oh...and the part about a 'cure' by Sept...she had asked how long it can take. I told her my LLMD said typically patients are on abx for 4-12 months (this is only this LLMD), I told her it can vary though!
Oh well...at least they didn't look up the IDSA and it said, "2 weeks and you are fine forever!"
Anyhow, thanks for reading and write comments if you feel so inclined...about testing and everything else!!
Take care,
Rachel AKA Ocean...my real name is out lol!
Happy Mother's Day to all the Mommy's out there too!
Posted by Tincup (Member # 5829) on :
Hey hey OC...
It is hard to say the article is good because it is so sad!
So in "newspaper terms" I guess the reporter did a good job!
Oh how I wish you weren't so sick though... oh my.
But you were brave to get out there and do that. And you did an excellent job with it.
This will give others who have may other conditions the inspiration to check it out.
The personal stories are what get many on the right track... and they relate to them. This will surely touch someone.
THANK YOU for doing this to help others.
You are the Hero of the Day... for sure!
Posted by sammy (Member # 13952) on :
Congratulations Ocean!
You did a great job sharing your story. That is exactly what people need to hear, how your life was before, the struggles you've had since, and finally the Lyme diagnosis.
People won't be able to remember a bunch of facts. But hopefully they will remember you when they see a tick on their loved one. And they will remember you when they hear of a sick friend. You gave Lyme and face and made it real for your community.
Thank you for being bold and sharing:) Think of all the people you have helped today!
Posted by Ann-OH (Member # 2020) on :
Yippee! and Thanks so much, Ocean! I thought the writer did a pretty good job. I liked this line
"...her emotional and physical roller coaster was one no person should have to endure."
I am sending the article to the people on my Ld E-list which includes a lot of Ohioans, and I am telling them to go to the website and write a comment if they can.
I am so proud of you! Ann - OH If anyone has trouble getting to the story, I turned the site into a tinyurl: www.tinyurl.com/ozlgmr Posted by bettyg (Member # 6147) on :
ocean,
good article! please email them THE CORRECTIONS & ANY OTHER COMMENTS SINCE FOLKS CAN READ YOUR COMMENTS ONLINE.
they might be able to do a CORRECTION to article too; they did for me!
i registered; i activated it, and i can NOT post; i sent newspaper reply to their REGISTRATION letter i received.
i'll keep trying.
Posted by Ocean (Member # 3496) on :
Thanks so much guys!
I am pretty happy with it overall, glad she didn't make it sound like Lyme is a walk in the park. I need to e-mail her a thank-you note for putting the awareness out there.
Yesterday at church I had the opportunity to speak to a woman with CFS and FM about Lyme. I was getting ready to leave even though church just started. I got really jerky, usually it's just my left arm, but my neck, legs and both arms were. I gave the woman info after we started talking about our illnesses and hopefully she will check out lyme.net soon!
Thanks again!
Posted by John S (Member # 19756) on :
Nice article. Hopefully another grain of sand tipping the balance.
Posted by bettyg (Member # 6147) on :
finally was able to reply....
Jami, thank you for the outstanding article on Rachael. Rachael, thank you for opening up about what all has gone with your health over the years! Hug
Clarification, Rachael can go into REMISSION by Sept. 09, but NOT CURED!
Only those recently bitten, put on antibiotics promptly & long enough, can be CURED! It's not in our vocabulary.
1980 - Jan. 2008; all 50 states broken down by years!
The International Lyme and Associated Diseases Society (ILADS) provides a forum for health science professionals to share their wealth of knowledge regarding the management of Lyme & associated diseases.
western blot igm/igg IGENEX blood test is NEEDED!
Posted by DeafFromLyme (Member # 18795) on :
Nice Job Ocean!!
I will never be able to call you Rachel though! To me you're Ocean and after a while it almost seems as if that IS your real name. (Even though I knew it wasn't)
Erika
Posted by DaveNJ (Member # 17362) on :
Ocean, Nice job.....that article is hard to read because i understand the pain....13 years...you are a true warrior.
Dave
Posted by bettyg (Member # 6147) on :
gosh, i thought more of you would have gone there to sign up and post your messages to! no one ??
![[Big Grin]](biggrin.gif)
![[Smile]](smile.gif)
To me you're Ocean and after a while it almost seems as if that IS your real name. (Even though I knew it wasn't)