Ocean
Frequent Contributor (1K+ posts)
Member # 3496
posted
Alright, so here it is! I am pretty pleased with it. There were a few mistakes, but nothing real serious! The only thing I wish is that they had written about the poor testing methods! She didn't end up putting any websites in, which kind of stinks, but oh well!
Also, in the 'real' hardcopy version. She used a lot of space for how to properly remove a tick, where ticks like to hide on the body and the size of an actual deer tick compared to a dime.
I had also asked her to put in my e-mail address, but that also got nixed.
Over all I'm pretty happy with it.
Oh and on the front page of the paper, it says, in pretty big words on the left side, "Madison Woman has to wait 13 years for a Diagnosis!"
So hopefully people will see it and want to read it!
If this link doesn't work, just use the www.mansfieldnewsjournal.com and then find the article under Lifestyle part.
Oh...and the part about a 'cure' by Sept...she had asked how long it can take. I told her my LLMD said typically patients are on abx for 4-12 months (this is only this LLMD), I told her it can vary though!
Oh well...at least they didn't look up the IDSA and it said, "2 weeks and you are fine forever!"
Anyhow, thanks for reading and write comments if you feel so inclined...about testing and everything else!!
Take care,
Rachel AKA Ocean...my real name is out lol!
Happy Mother's Day to all the Mommy's out there too!
sammy
Frequent Contributor (5K+ posts)
Member # 13952
posted
Congratulations Ocean!
You did a great job sharing your story. That is exactly what people need to hear, how your life was before, the struggles you've had since, and finally the Lyme diagnosis.
People won't be able to remember a bunch of facts. But hopefully they will remember you when they see a tick on their loved one. And they will remember you when they hear of a sick friend. You gave Lyme and face and made it real for your community.
Thank you for being bold and sharing:) Think of all the people you have helped today!
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Ann-OH
Frequent Contributor (5K+ posts)
Member # 2020
posted
Yippee! and Thanks so much, Ocean! I thought the writer did a pretty good job. I liked this line
"...her emotional and physical roller coaster was one no person should have to endure."
I am sending the article to the people on my Ld E-list which includes a lot of Ohioans, and I am telling them to go to the website and write a comment if they can.
I am so proud of you! Ann - OH If anyone has trouble getting to the story, I turned the site into a tinyurl: www.tinyurl.com/ozlgmr
Ocean
Frequent Contributor (1K+ posts)
Member # 3496
posted
Thanks so much guys!
I am pretty happy with it overall, glad she didn't make it sound like Lyme is a walk in the park. I need to e-mail her a thank-you note for putting the awareness out there.
Yesterday at church I had the opportunity to speak to a woman with CFS and FM about Lyme. I was getting ready to leave even though church just started. I got really jerky, usually it's just my left arm, but my neck, legs and both arms were. I gave the woman info after we started talking about our illnesses and hopefully she will check out lyme.net soon!
The International Lyme and Associated Diseases Society (ILADS) provides a forum for health science professionals to share their wealth of knowledge regarding the management of Lyme & associated diseases.
I will never be able to call you Rachel though! To me you're Ocean and after a while it almost seems as if that IS your real name. (Even though I knew it wasn't)
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
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To me you're Ocean and after a while it almost seems as if that IS your real name. (Even though I knew it wasn't)
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