I was bit in Peru 5 yrs ago in the Amazon and just didn't think anything of it. Looking back, I started having some slight symptoms. Then last year I was bit and my Husband had to pull the tick out of me but that one wasn't in for very long-so, I'm not sure if it has anything to do with that bite. I could have gotten bit in between and never have known it... Who knows... but, definitely over the past year- I started getting sciatica, really swollen joints on and off,incredible joint pain... I do work 2 jobs and spend a lot of hours on my feet- so I never associated the pain with a disease.
I was an avid runner and started training for a half marathon in May- running 10 mile clips at a time, (I have ran many miles but never had done 10 at once)- and after a month of that my "good" knee just started giving out- I had a horrible time moving my knee-and I had to stop running in June. Then it progressively got worse, really fast from June til a month ago- when I had to drag my one leg while crossing the street b/c it was in so much pain and just wouldnt move. I literally felt like I was 95 and paralyzed!I went to visit my mom- and couldn't get off her couch. I just thought I was sore and hurting from being on my feet sometimes 15 hours a day ...I didn't equate it with being sick. My immune system was at it's ultimate low when I started hurting the most. I went on a quick 5 day trip with a friend to Scandanavia- where I didn't sleep or eat properly and came back to directly be thrown into working for 17 days straight. That's when I just knew something wasn't right. When I couldn't move my legs from my knees to my hips. I decided I had to stop being so stubborn and finally go to the doctor. My doctor put me on doxy for 2 weeks before a lyme test- and after the two weeks, it came up positive. I was glad to have a diagnosis but also knew it was a long road ahead. I've been on Doxy for 4 weeks now (having to go through other specialists to get more anti-B's when my own doc said "sorry, you should be feeling better by now"-)
Anyway, I am significantly better than I was b/c I can move my legs now! But, I am still extremely tired, joints still sore- it moves around- so I never really know what will hurt from one day to the next ( As I am sure you are all well aware of) and a headache that just won't go away. My brain feels like I've smoked WAAAAY too much pot and can't remember what I was doing 2 minutes before.. etc etc The thing is, is that I look just fine... no one would ever know how much I'm hurting or how tired I am.
I did go to an Infectious Disease Specialist the other day- and was put on another month of doxy 100mg but this time it's 3x's a day instead of two. So, I will be tested again in 1 month and hopefully this next month I'll be back to my "normal" self.
I'm intimidated to stop the Anti B's b/c I'm afraid it will come back. I'm just going to keep taking the amazing immune supplements- stick to my lyme diet that I'm on, getting massages/body work, saunas, going to my healer friends, all while taking this doxy.
I do feel like I've gotten this disease for a myriad of reasons- and I am grateful for the lessons it is teaching me.
Has anyone ever seen 8 weeks of doxy cure lyme? I'm also terrified to become pregnant. I don't want to pass this along to a newborn.
I know there are people on here who are far more worse than I am but I am just feeling kind of sad today and need to reach other people. If you have gotten this far in reading- I send you a big thank you hug.
xxx, Moonchild.
Some advice would be appreciated. I just don't know what else to do.
Posted by Dekrator48 (Member # 18239) on :
Hi and welcome!
Sorry you are in this boat with the rest of us.
It is doubtful that you will fully recover with 8 weeks of doxy at this point.
Lyme literate MD's (LLMD) follow ILADS guidelines and use long term combination antibiotic therapy.
You absolutely must start by reading Dr B's guidelines.....
![[Smile]](smile.gif)
But, I am still extremely tired, joints still sore- it moves around- so I never really know what will hurt from one day to the next ( As I am sure you are all well aware of) and a headache that just won't go away. My brain feels like I've smoked WAAAAY too much pot and can't remember what I was doing 2 minutes before.. etc etc The thing is, is that I look just fine... no one would ever know how much I'm hurting or how tired I am.