I was bit in Peru 5 yrs ago in the Amazon and just didn't think anything of it. Looking back, I started having some slight symptoms. Then last year I was bit and my Husband had to pull the tick out of me but that one wasn't in for very long-so, I'm not sure if it has anything to do with that bite. I could have gotten bit in between and never have known it... Who knows... but, definitely over the past year- I started getting sciatica, really swollen joints on and off,incredible joint pain... I do work 2 jobs and spend a lot of hours on my feet- so I never associated the pain with a disease.
I was an avid runner and started training for a half marathon in May- running 10 mile clips at a time, (I have ran many miles but never had done 10 at once)- and after a month of that my "good" knee just started giving out- I had a horrible time moving my knee-and I had to stop running in June. Then it progressively got worse, really fast from June til a month ago- when I had to drag my one leg while crossing the street b/c it was in so much pain and just wouldnt move. I literally felt like I was 95 and paralyzed!I went to visit my mom- and couldn't get off her couch. I just thought I was sore and hurting from being on my feet sometimes 15 hours a day ...I didn't equate it with being sick. My immune system was at it's ultimate low when I started hurting the most. I went on a quick 5 day trip with a friend to Scandanavia- where I didn't sleep or eat properly and came back to directly be thrown into working for 17 days straight. That's when I just knew something wasn't right. When I couldn't move my legs from my knees to my hips. I decided I had to stop being so stubborn and finally go to the doctor. My doctor put me on doxy for 2 weeks before a lyme test- and after the two weeks, it came up positive. I was glad to have a diagnosis but also knew it was a long road ahead. I've been on Doxy for 4 weeks now (having to go through other specialists to get more anti-B's when my own doc said "sorry, you should be feeling better by now"-)
Anyway, I am significantly better than I was b/c I can move my legs now! But, I am still extremely tired, joints still sore- it moves around- so I never really know what will hurt from one day to the next ( As I am sure you are all well aware of) and a headache that just won't go away. My brain feels like I've smoked WAAAAY too much pot and can't remember what I was doing 2 minutes before.. etc etc The thing is, is that I look just fine... no one would ever know how much I'm hurting or how tired I am.
I did go to an Infectious Disease Specialist the other day- and was put on another month of doxy 100mg but this time it's 3x's a day instead of two. So, I will be tested again in 1 month and hopefully this next month I'll be back to my "normal" self.
I'm intimidated to stop the Anti B's b/c I'm afraid it will come back. I'm just going to keep taking the amazing immune supplements- stick to my lyme diet that I'm on, getting massages/body work, saunas, going to my healer friends, all while taking this doxy.
I do feel like I've gotten this disease for a myriad of reasons- and I am grateful for the lessons it is teaching me.
Has anyone ever seen 8 weeks of doxy cure lyme? I'm also terrified to become pregnant. I don't want to pass this along to a newborn.
I know there are people on here who are far more worse than I am but I am just feeling kind of sad today and need to reach other people. If you have gotten this far in reading- I send you a big thank you hug.
xxx, Moonchild.
Some advice would be appreciated. I just don't know what else to do.
Posts: 15 | From NY | Registered: Nov 2009
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
Hi and welcome!
Sorry you are in this boat with the rest of us.
It is doubtful that you will fully recover with 8 weeks of doxy at this point.
Lyme literate MD's (LLMD) follow ILADS guidelines and use long term combination antibiotic therapy.
You absolutely must start by reading Dr B's guidelines.....
Read posts here and continue to post and ask questions....there is soooo much to learn.
You will also get more replies by posting this on the Medical Questions board instead.
You are on the right track now though.
Good luck in your recovery.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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But, I am still extremely tired, joints still sore- it moves around- so I never really know what will hurt from one day to the next ( As I am sure you are all well aware of) and a headache that just won't go away. My brain feels like I've smoked WAAAAY too much pot and can't remember what I was doing 2 minutes before.. etc etc The thing is, is that I look just fine... no one would ever know how much I'm hurting or how tired I am.
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