S.L.A.M. has met a family who was given a diagnosis of MS now to find out it may be Lyme.
While so many of us have had this very diagnosis and have been treated to find a better quality of life, this family is confused and would like to hear from those who have been thru the same.
If you were once dx with MS and are now undergoing Lyme treatment please contact me if you are willing to talk to this family who desperately needs direction. contact [email protected]
Thanks,
Trish
Posted by dmc (Member # 5102) on :
17 yrs MS found a LLMD and found out yea its Lyme.
Sent you a PM that you can forward to them.
Posted by laura j (Member # 14257) on :
Was up in the air as to whether it was Lyme or MS for me. I had 10 oligoclonal bands on spinal tap as well as many other markers and 2 brain lesions on MRI.
Luckily my neurologist is "Lyme friendly" and wanted to wait to see how I responded to antibiotics before throwing an MS diagnosis at me. I have responded to antibiotics so I guess it's obvious it's Lyme (and many co-infections) with me.
I'm not cured (yet) but the antibiotics definitely have brought me a long way and the neuro symptoms are much improved.
Please forward this this to them. Thank you
Posted by Keebler (Member # 12673) on :
- What or who is S.L.A.M. ? -
Posted by ping (Member # 6974) on :
quote:Originally posted by Keebler: - What or who is S.L.A.M. ? -
My question too... Why don't you suggest the family, or one member of it post on this site? That way, the info is a matter of record for others just like them...
Posted by Keebler (Member # 12673) on :
- Also, I see there is an email. Most people will not email to a blind email as then that person has the sender's email address and most like to know who that person is before sending.
MS misdiagnosis is frequent. There are many past threads if you'd want to search and collect the best selections and send to your friends that way.
Here's the link to search archives for past threads: