posted
S.L.A.M. has met a family who was given a diagnosis of MS now to find out it may be Lyme.
While so many of us have had this very diagnosis and have been treated to find a better quality of life, this family is confused and would like to hear from those who have been thru the same.
If you were once dx with MS and are now undergoing Lyme treatment please contact me if you are willing to talk to this family who desperately needs direction. contact [email protected]
Thanks,
Trish
Posts: 142 | From Sturbridge, MA | Registered: Jul 2006
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dmc
Frequent Contributor (1K+ posts)
Member # 5102
posted
17 yrs MS found a LLMD and found out yea its Lyme.
Sent you a PM that you can forward to them.
Posts: 2675 | From ct, usa | Registered: Jan 2004
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tickled1
Frequent Contributor (1K+ posts)
Member # 14257
posted
Was up in the air as to whether it was Lyme or MS for me. I had 10 oligoclonal bands on spinal tap as well as many other markers and 2 brain lesions on MRI.
Luckily my neurologist is "Lyme friendly" and wanted to wait to see how I responded to antibiotics before throwing an MS diagnosis at me. I have responded to antibiotics so I guess it's obvious it's Lyme (and many co-infections) with me.
I'm not cured (yet) but the antibiotics definitely have brought me a long way and the neuro symptoms are much improved.
Please forward this this to them. Thank you
Posts: 2541 | From Northeast | Registered: Jan 2008
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- What or who is S.L.A.M. ? -
Posts: 48021 | From Tree House | Registered: Jul 2007
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ping
Frequent Contributor (1K+ posts)
Member # 6974
posted
quote:Originally posted by Keebler: - What or who is S.L.A.M. ? -
My question too... Why don't you suggest the family, or one member of it post on this site? That way, the info is a matter of record for others just like them...
-------------------- ping "We are more than containers for Lyme" Posts: 1302 | From Back in TX again | Registered: Mar 2005
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Also, I see there is an email. Most people will not email to a blind email as then that person has the sender's email address and most like to know who that person is before sending.
MS misdiagnosis is frequent. There are many past threads if you'd want to search and collect the best selections and send to your friends that way.
Here's the link to search archives for past threads:
Search in the subject line for both "MS" and "multiple sclerosis"
A Google cross- search will also bring up links. An alternate search term for lyme is borreliosis and neuroborreliosis.
Good luck for your friends, whomever S.L.A.M. may be. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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karenl
Frequent Contributor (1K+ posts)
Member # 17753
posted
Some people say MS can be chlamydia pneumonia or both. Please post your question there as well cpnhelp.com
Posts: 1834 | From US | Registered: Oct 2008
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