I've got people wanting to know my motive for the poll. My motive: I want answers!!!!!! Do you want to depend on some Government run organization for the facts? I want to hear from the people!!! So to those who are suspicious, this is my reason. Plus, I'd like to use the info in a research paper. Here is the link:
It's also posted under Activism. You guys pass it around. Don't worry about folks voting twice...they'll know if they've voted before or not.
[ 08-18-2010, 09:32 AM: Message edited by: arkiehinny ]
Posted by Tincup (Member # 5829) on :
Dear A... I don't want to burst your bubble, but, just so you know..
It isn't real good for many folks to put their location on the board and display it publicly. Think insurance, disability, health department, and your LLMD.
The less you share about your personal life and details online, the better.
Posted by SEREN J WEED (Member # 7280) on :
Cost Mesa, Orange County, California
Posted by Misfit (Member # 26270) on :
Pittsburg county, oklahoma
Posted by lymeladyinNY (Member # 10235) on :
Frederick County, Maryland
Posted by Lymetoo (Member # 743) on :
Burleson County, Texas
Posted by Pocono Lyme (Member # 5939) on :
Lackawanna County, PA
Posted by Keebler (Member # 12673) on :
- It's everywhere. There is no place, even in the dessert, that can say it's lyme-free. Well, maybe the North and South Poles but anywhere birds fly and mouse scamper, ships sail, etc. ticks travel, too. -
[ 08-14-2010, 04:54 PM: Message edited by: Keebler ]
Posted by erikjh1972 (Member # 20964) on :
cranston, ri
Posted by sixgoofykids (Member # 11141) on :
First, Montgomery County, Ohio
Second time, Owen County, Indiana
Please note, neither place officially has Lyme Disease. My CDC positive WB was not reported and when I contacted the CDC they told me that if I was not happy with my doctor to find a new one.
Posted by mcg08002 (Member # 24617) on :
First Time: yellow Stone National Park in Wyoming
Second Time: Russia while I was teaching
Third Time: Oregon right before my wedding...
Posted by Lymetoo (Member # 743) on :
Wow, mcg.. maybe I was bitten in Yellowstone too! Ya never know! We traveled there about the same time we began going to our wooded land in TX.
I had also traveled in MN by that time in my life.
I have always assumed I got it in TX... got hundreds of ticks on me the first day we were there. Then more every weekend for years.
That was almost 20 yrs before Lyme was "discovered."
Posted by Tincup (Member # 5829) on :
Thank you very much Arkie.
Good deal!
Posted by Robin123 (Member # 9197) on :
Keebler - it is at the south pole - the penguins have tickborne disease - they got it from the tourists - no, not human tourists; bird tourists.
It's all over the world, due to bird flyways.
Me - Big Sur CA.
CALDA did a survey a little while back - folks there got it all over CA and then some. It's reported in the Touched By Lyme blog at www.lymedisease.org. Posted by Paul Mall (Member # 27581) on :
Connecticut.. no surprise .. still can't get a diagnosis here without bothering your doctors for 2 years though
Posted by MDW005 (Member # 22706) on :
Butt's County, Georgia.... No lie that is the name of the county!
Posted by sutherngrl (Member # 16270) on :
Rankin County, Mississippi
And I'm not the only one. There are at least 20 that I know of, and surely there are more. None of us are counted though, as the CDC says we have no cases of LD in MS. That is so wrong!!!
The sad thing is the CDC post these numbers anyway, knowing they are wrong, which is misleading to physicians, thus LD is never thought of as a possible diagnosis; and then that leads to those of us with LD, becoming chronically and seriously ill.
[ 08-16-2010, 01:25 PM: Message edited by: sutherngrl ]
Posted by TxCoord (Member # 9204) on :
Silverwolf is unsure as her family camped in Wash, Ore, Id and she has lived in Louisiana and knows for sure she was scratched by cats.
As for me, we have no proof/diagnosis that I have Lyme or any of the co-infections but I have lived in Wash, Ore, Idaho, Calif, Louisiana, Tx, R.I. Maine, New Hampshire, S.D. Wyoming, Ariz, & Thailand. Who knows.
Posted by onbam (Member # 23758) on :
It is everywhere. Someone with LD goes to Antarctica, gets a nosebleed, and sneezes on a penguin--bam, it's in Antarctica too.
Posted by kadee (Member # 21199) on :
Aptos, California 1987
Posted by TN Kim (Member # 26729) on :
Rutherford County, Tennessee.
Posted by lymephobic (Member # 17556) on :
Monmouth County NJ
Posted by 17hens (Member # 23747) on :
Lyme, Bartonella, Babesia
me, my daughter, my son, my husband, 5 other people on my street, and 7 of my friends who live w/in 3 miles of my house, got it in Dauphin County, Pennsylvania, 2003 - present
and 8 more of my friends got it in Cumberland County, PA, 2005 - present
and one of my relatives got it in York County, PA, 2007
All of us (except the York county relative) live in the suburbs of Harrisburg.
And NONE of us had doctors who believed we could possibly have lyme.
And you can bet none of our illnesses are included in any CDC's count!!!
Posted by arkiehinny (Member # 26546) on :
Okay, I have the link up & running. Thanks to everyone for your boldness! Please feel free to pass this on so others will vote in the poll! The link is above & posted in Activism.
Posted by Rene (Member # 4870) on :
Calvert County MD.
Posted by BackinStOlaf (Member # 23725) on :
The Hamptons, NY
Posted by glm1111 (Member # 16556) on :
Many tick bites in Montgomery County (Scwenksville, Pa...about 45 min from Philly)Also lived in Harrisburg suburbs when I first got married back in the 60's. Grew up playing in the woods in Allentown, Pa.
Posted by LymeGoAway (Member # 25041) on :
Berkshire County, Massachusetts in March 2008.
Posted by 2roads (Member # 4409) on :
Chester County, PA
All 4 family members and on avg one per household in our neighborhood (some 2 or more, an ocassional none).
The deer owned my property, it's a shame they didn't pay the damb mortgage.......or all the medical bills. Posted by arkiehinny (Member # 26546) on :
I had a couple of messages from folks wanting to know just how the information will be used. I think they were suspicious. So I added WHY I was doing the poll. To get the answers & try to use the info in a research paper.
Posted by AlanaSuzanne (Member # 25882) on :
Pick a state, any state.
Posted by Robin123 (Member # 9197) on :
I just watched your videos - nice clear work! And the comments that folks wrote on your pages are something else - very powerful comments - I was quite moved by them. You have the ability to speak very strongly from the heart. Keep it up, you new activist, you!
Posted by arkiehinny (Member # 26546) on :
Robin123: Thank you! Yep, I'm turning into a litte activist. Just give me the signs & the people....we'll march!
Posted by arkiehinny (Member # 26546) on :
to your friends. Thank you all for your participation. If you put your vote here on the thread, please go to the link and vote there.
Posted by Elaine G (Member # 20735) on :
You don't have central New Jersey on your poll, only North and South Jersey. I answered the poll North Jersey, since location was closer to North Jersey then South.
Posted by arkiehinny (Member # 26546) on :
quote:Originally posted by Elaine G: You don't have central New Jersey on your poll, only North and South Jersey. I answered the poll North Jersey, since location was closer to North Jersey then South.
Thank you Elaine. I tried to list as many as possible, but it took hours to compose.
Posted by arkiehinny (Member # 26546) on :
I want to urge everyone to pass this link to others. I have had some participation, but feel like there are many more. I appreciate all who have gone to the poll & voted. Not all people from other Lyme Forums have been accepting, for some reason. Regardless, I still feel it's interesting & important. Thanks.
Posted by Elaine G (Member # 20735) on :
Ark,
I'm sure this took you a great deal of time to set this up. Thank you.
I didn't know if you would take NJ as a whole state or areas. That is the only reason I mentioned Central NJ. We don't fit in with Northern or Southern NJ. As long as I cast my vote for NJ is the important factor.
It is an interesting poll.
Posted by arkiehinny (Member # 26546) on :
Elaine G. You are right. It took hours to write & build. Thank you for recognizing it as an interesting poll. It's important to me. God bless.
Posted by opus2828 (Member # 15407) on :
I did not see this choice on the poll Long Island, NY
Posted by TS96 (Member # 14048) on :
Ontario Co, NY 1976
dd- Monroe, Co NY 2009
Posted by lymednva (Member # 9098) on :
OK, AR, CO, MO, or who knows where else. I got around a lot when I was a kid.
Posted by lululymemom (Member # 26405) on :
It would have been interesting to know how many of you actually had seen a bite? Or are you assuming it has happened in the area you are in?
If all those answering actually seen bites, the stats must be wrong about only 30% having had them.
Maybe another poll?
Posted by Robin123 (Member # 9197) on :
I saw the tick that bit me. It was in my foot a week. I didn't know it meant anything and neither did the local health clinic that removed it.
Because I saw it, I can date every symptom. Like it took 18 months from the date of the bite for full-fledged fibromyalgia to develop.
Posted by lululymemom (Member # 26405) on :
You are lucky to have seen it. I never did, so trying to figure out when and where it happened would be next to impossible.
Still wonder how someone can get bit and never know. Since they are difficult to remove.
Posted by arkiehinny (Member # 26546) on :
Thanks for the great response so far!! I'm sorry if your area wasn't listed. I tried to divide the states up but it was tedious. Regardless, if you guys listed your county here on the thread, make sure you vote in the actual poll at the link in my first post. Thanks!
Posted by madge (Member # 13704) on :
jersey shore camp ground in 2002..hubby had this bite on his leg...got real big and circles.. asked a few people if they knew anything...not one person had a answer...
one week later he went to fam dr for a check up and showed him...he thought it could be a spider bite.....
back then we never heard anything about a bulls eye..or even Lyme...
took 6 mts when he got so sick and 4 yrs to get any answers...now in treatment 4 yrs Posted by kimmie (Member # 25547) on :
Tick bite Cherokee County, Georgia for myself
My daughter...erythema migrans rash Cherokee COunty Geogia (metro Atlanta)
She was misdiagnosed with ringworm and told no lyme here silly goose! I was misdiagnosed as "marital problems" my lyme test was false positive...
Neither of us ever reported to the CDC of course.
Posted by libby333 (Member # 26573) on :
Tick bite in Sumner County, TN. That is in Northern-Middle TN. I didn't see it on your poll. Great work!
Posted by arkiehinny (Member # 26546) on :
Wow, great work guys!!
Looks like Georgia & Tennessee really have a bad problem. I expected the NE & California....also Florida is really heavy with Lyme.
Keep forwarding the link, yall! Please!
Posted by linky123 (Member # 19974) on :
Most likely in Yellowstone Nat'l Park, WY, worked as a ranger there.
Lived and worked in many different parts of the country and spent lots of time outdoors, so don't know for sure?
Posted by sammy (Member # 13952) on :
From hiking in Yellow Springs OH.
Posted by novy (Member # 25987) on :
new jersey- i was a horticulturist, always spending a lot of time outdoors during work hours and off-
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