I've got people wanting to know my motive for the poll. My motive: I want answers!!!!!! Do you want to depend on some Government run organization for the facts? I want to hear from the people!!! So to those who are suspicious, this is my reason. Plus, I'd like to use the info in a research paper. Here is the link:
It's also posted under Activism. You guys pass it around. Don't worry about folks voting twice...they'll know if they've voted before or not.
-------------------- Early Disseminated LD- 2010. Currently doing acupuncture and yoga. Negative Igenex (IND & Pos Bands) ISSUES AFTER: Tendonitis, letter reversal, Low immune system. PREVENTION:SaltC,Iodine,Humaworm, Chiropractic. Posts: 1013 | From In a van down by the river. | Registered: Jun 2010
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Dear A... I don't want to burst your bubble, but, just so you know..
It isn't real good for many folks to put their location on the board and display it publicly. Think insurance, disability, health department, and your LLMD.
The less you share about your personal life and details online, the better.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Pocono Lyme
Frequent Contributor (1K+ posts)
Member # 5939
posted
Lackawanna County, PA
-------------------- 2 Corinthians 12:9-11
9 But he said to me, �My grace is sufficient for you, for my power is made perfect in weakness.� Therefore I will boast all the more gladly about my weaknesses, so that Christ�s power may rest on me. Posts: 1445 | From Poconos, PA | Registered: Jul 2004
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- It's everywhere. There is no place, even in the dessert, that can say it's lyme-free. Well, maybe the North and South Poles but anywhere birds fly and mouse scamper, ships sail, etc. ticks travel, too. -
[ 08-14-2010, 04:54 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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-------------------- 3 months Doxy 8 months of Tetra 7 months of Biaxin/Plaq. 4 months Doxy/Biaxin/Plaq. 5 months Biaxin/Plaq. Back on Doxy/Biax/Plaq On the road to recovery. Trying to make people Lyme Aware....... Posts: 289 | From R.I. | Registered: Jun 2009
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sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
First, Montgomery County, Ohio
Second time, Owen County, Indiana
Please note, neither place officially has Lyme Disease. My CDC positive WB was not reported and when I contacted the CDC they told me that if I was not happy with my doctor to find a new one.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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posted
Keebler - it is at the south pole - the penguins have tickborne disease - they got it from the tourists - no, not human tourists; bird tourists.
It's all over the world, due to bird flyways.
Me - Big Sur CA.
CALDA did a survey a little while back - folks there got it all over CA and then some. It's reported in the Touched By Lyme blog at www.lymedisease.org.Posts: 13171 | From San Francisco | Registered: May 2006
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posted
Connecticut.. no surprise .. still can't get a diagnosis here without bothering your doctors for 2 years though
Posts: 925 | From Connecticut | Registered: Aug 2010
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MDW005
Frequent Contributor (1K+ posts)
Member # 22706
posted
Butt's County, Georgia.... No lie that is the name of the county!
-------------------- God's promises mean you always have something wonderful to look forward to. Posts: 2150 | From Georgia | Registered: Oct 2009
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
Rankin County, Mississippi
And I'm not the only one. There are at least 20 that I know of, and surely there are more. None of us are counted though, as the CDC says we have no cases of LD in MS. That is so wrong!!!
The sad thing is the CDC post these numbers anyway, knowing they are wrong, which is misleading to physicians, thus LD is never thought of as a possible diagnosis; and then that leads to those of us with LD, becoming chronically and seriously ill.
posted
Silverwolf is unsure as her family camped in Wash, Ore, Id and she has lived in Louisiana and knows for sure she was scratched by cats.
As for me, we have no proof/diagnosis that I have Lyme or any of the co-infections but I have lived in Wash, Ore, Idaho, Calif, Louisiana, Tx, R.I. Maine, New Hampshire, S.D. Wyoming, Ariz, & Thailand. Who knows.
-------------------- I have a good time wherever I go! Posts: 665 | From Lost Wages, NV | Registered: May 2006
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onbam
Unregistered
posted
It is everywhere. Someone with LD goes to Antarctica, gets a nosebleed, and sneezes on a penguin--bam, it's in Antarctica too.
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posted
Monmouth County NJ
Posts: 193 | From New Jersey | Registered: Oct 2008
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17hens
Frequent Contributor (1K+ posts)
Member # 23747
posted
Lyme, Bartonella, Babesia
me, my daughter, my son, my husband, 5 other people on my street, and 7 of my friends who live w/in 3 miles of my house, got it in Dauphin County, Pennsylvania, 2003 - present
and 8 more of my friends got it in Cumberland County, PA, 2005 - present
and one of my relatives got it in York County, PA, 2007
All of us (except the York county relative) live in the suburbs of Harrisburg.
And NONE of us had doctors who believed we could possibly have lyme.
And you can bet none of our illnesses are included in any CDC's count!!!
-------------------- "My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26
bit 4/09, diagnosed 1/10 Posts: 3043 | From PA | Registered: Dec 2009
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Tricky Tickey
Frequent Contributor (1K+ posts)
Member # 26546
posted
Okay, I have the link up & running. Thanks to everyone for your boldness! Please feel free to pass this on so others will vote in the poll! The link is above & posted in Activism.
-------------------- Early Disseminated LD- 2010. Currently doing acupuncture and yoga. Negative Igenex (IND & Pos Bands) ISSUES AFTER: Tendonitis, letter reversal, Low immune system. PREVENTION:SaltC,Iodine,Humaworm, Chiropractic. Posts: 1013 | From In a van down by the river. | Registered: Jun 2010
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posted
Calvert County MD.
Posts: 366 | From Louisville KY. | Registered: Nov 2003
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BackinStOlaf
Frequent Contributor (1K+ posts)
Member # 23725
posted
The Hamptons, NY
-------------------- First Symptom 9/09 Multiple docs, negative Labcorp test LLMD: 1/10 Positive Igenex/CDC test Treatment 2/10 2/10-8/10 Amox, ceftin, zith, flagyl Currently: Bicillin, Minocycline, still dealing with severe breathing issues
Posts: 1121 | From New York, New York | Registered: Dec 2009
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Many tick bites in Montgomery County (Scwenksville, Pa...about 45 min from Philly)Also lived in Harrisburg suburbs when I first got married back in the 60's. Grew up playing in the woods in Allentown, Pa.
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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posted
Berkshire County, Massachusetts in March 2008.
Posts: 227 | From Northeast | Registered: Mar 2010
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2roads
Frequent Contributor (1K+ posts)
Member # 4409
posted
Chester County, PA
All 4 family members and on avg one per household in our neighborhood (some 2 or more, an ocassional none).
The deer owned my property, it's a shame they didn't pay the damb mortgage.......or all the medical bills. Posts: 2214 | From West Chester, PA | Registered: Aug 2003
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Tricky Tickey
Frequent Contributor (1K+ posts)
Member # 26546
posted
I had a couple of messages from folks wanting to know just how the information will be used. I think they were suspicious. So I added WHY I was doing the poll. To get the answers & try to use the info in a research paper.
-------------------- Early Disseminated LD- 2010. Currently doing acupuncture and yoga. Negative Igenex (IND & Pos Bands) ISSUES AFTER: Tendonitis, letter reversal, Low immune system. PREVENTION:SaltC,Iodine,Humaworm, Chiropractic. Posts: 1013 | From In a van down by the river. | Registered: Jun 2010
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-------------------- You gain strength, courage, and confidence by every experience in which you really stop to look fear in the face. You are able to say to yourself, 'I lived through this horror. I can take the next thing that comes along.'
---Eleanor Roosevelt Posts: 748 | From somewhere | Registered: May 2010
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posted
I just watched your videos - nice clear work! And the comments that folks wrote on your pages are something else - very powerful comments - I was quite moved by them. You have the ability to speak very strongly from the heart. Keep it up, you new activist, you!
Posts: 13171 | From San Francisco | Registered: May 2006
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Tricky Tickey
Frequent Contributor (1K+ posts)
Member # 26546
posted
Robin123: Thank you! Yep, I'm turning into a litte activist. Just give me the signs & the people....we'll march!
-------------------- Early Disseminated LD- 2010. Currently doing acupuncture and yoga. Negative Igenex (IND & Pos Bands) ISSUES AFTER: Tendonitis, letter reversal, Low immune system. PREVENTION:SaltC,Iodine,Humaworm, Chiropractic. Posts: 1013 | From In a van down by the river. | Registered: Jun 2010
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Tricky Tickey
Frequent Contributor (1K+ posts)
Member # 26546
to your friends. Thank you all for your participation. If you put your vote here on the thread, please go to the link and vote there.
-------------------- Early Disseminated LD- 2010. Currently doing acupuncture and yoga. Negative Igenex (IND & Pos Bands) ISSUES AFTER: Tendonitis, letter reversal, Low immune system. PREVENTION:SaltC,Iodine,Humaworm, Chiropractic. Posts: 1013 | From In a van down by the river. | Registered: Jun 2010
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posted
You don't have central New Jersey on your poll, only North and South Jersey. I answered the poll North Jersey, since location was closer to North Jersey then South.
Posts: 671 | From Fort Myers, Florida | Registered: Jun 2009
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Tricky Tickey
Frequent Contributor (1K+ posts)
Member # 26546
posted
quote:Originally posted by Elaine G: You don't have central New Jersey on your poll, only North and South Jersey. I answered the poll North Jersey, since location was closer to North Jersey then South.
Thank you Elaine. I tried to list as many as possible, but it took hours to compose.
-------------------- Early Disseminated LD- 2010. Currently doing acupuncture and yoga. Negative Igenex (IND & Pos Bands) ISSUES AFTER: Tendonitis, letter reversal, Low immune system. PREVENTION:SaltC,Iodine,Humaworm, Chiropractic. Posts: 1013 | From In a van down by the river. | Registered: Jun 2010
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Tricky Tickey
Frequent Contributor (1K+ posts)
Member # 26546
posted
I want to urge everyone to pass this link to others. I have had some participation, but feel like there are many more. I appreciate all who have gone to the poll & voted. Not all people from other Lyme Forums have been accepting, for some reason. Regardless, I still feel it's interesting & important. Thanks.
-------------------- Early Disseminated LD- 2010. Currently doing acupuncture and yoga. Negative Igenex (IND & Pos Bands) ISSUES AFTER: Tendonitis, letter reversal, Low immune system. PREVENTION:SaltC,Iodine,Humaworm, Chiropractic. Posts: 1013 | From In a van down by the river. | Registered: Jun 2010
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I'm sure this took you a great deal of time to set this up. Thank you.
I didn't know if you would take NJ as a whole state or areas. That is the only reason I mentioned Central NJ. We don't fit in with Northern or Southern NJ. As long as I cast my vote for NJ is the important factor.
It is an interesting poll.
Posts: 671 | From Fort Myers, Florida | Registered: Jun 2009
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Tricky Tickey
Frequent Contributor (1K+ posts)
Member # 26546
posted
Elaine G. You are right. It took hours to write & build. Thank you for recognizing it as an interesting poll. It's important to me. God bless.
-------------------- Early Disseminated LD- 2010. Currently doing acupuncture and yoga. Negative Igenex (IND & Pos Bands) ISSUES AFTER: Tendonitis, letter reversal, Low immune system. PREVENTION:SaltC,Iodine,Humaworm, Chiropractic. Posts: 1013 | From In a van down by the river. | Registered: Jun 2010
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-------------------- Bart Henslea 1976 Fibro/CFS/arthritis 2004 Lyme diagnosed 2007 3 1/2 years treatment with oral combos, Cowden, IV roc. BW herbs. Off all abx in 12/10. Feeling good. Posts: 647 | From NY | Registered: Dec 2007
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lymednva
Frequent Contributor (1K+ posts)
Member # 9098
posted
OK, AR, CO, MO, or who knows where else. I got around a lot when I was a kid.
-------------------- Lymednva Posts: 2407 | From over the river and through the woods | Registered: Apr 2006
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lululymemom
Frequent Contributor (1K+ posts)
Member # 26405
posted
It would have been interesting to know how many of you actually had seen a bite? Or are you assuming it has happened in the area you are in?
If all those answering actually seen bites, the stats must be wrong about only 30% having had them.
posted
I saw the tick that bit me. It was in my foot a week. I didn't know it meant anything and neither did the local health clinic that removed it.
Because I saw it, I can date every symptom. Like it took 18 months from the date of the bite for full-fledged fibromyalgia to develop.
Posts: 13171 | From San Francisco | Registered: May 2006
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lululymemom
Frequent Contributor (1K+ posts)
Member # 26405
posted
You are lucky to have seen it. I never did, so trying to figure out when and where it happened would be next to impossible.
Still wonder how someone can get bit and never know. Since they are difficult to remove.
Bartonella henselae 1:100 Posts: 2027 | From British Columbia | Registered: Jun 2010
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Tricky Tickey
Frequent Contributor (1K+ posts)
Member # 26546
posted
Thanks for the great response so far!! I'm sorry if your area wasn't listed. I tried to divide the states up but it was tedious. Regardless, if you guys listed your county here on the thread, make sure you vote in the actual poll at the link in my first post. Thanks!
-------------------- Early Disseminated LD- 2010. Currently doing acupuncture and yoga. Negative Igenex (IND & Pos Bands) ISSUES AFTER: Tendonitis, letter reversal, Low immune system. PREVENTION:SaltC,Iodine,Humaworm, Chiropractic. Posts: 1013 | From In a van down by the river. | Registered: Jun 2010
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posted
jersey shore camp ground in 2002..hubby had this bite on his leg...got real big and circles.. asked a few people if they knew anything...not one person had a answer...
one week later he went to fam dr for a check up and showed him...he thought it could be a spider bite.....
back then we never heard anything about a bulls eye..or even Lyme...
took 6 mts when he got so sick and 4 yrs to get any answers...now in treatment 4 yrs
-------------------- madgen Posts: 342 | From newjersey | Registered: Oct 2007
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posted
Tick bite in Sumner County, TN. That is in Northern-Middle TN. I didn't see it on your poll. Great work!
Posts: 27 | From Cottontown, Tn | Registered: Jun 2010
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Tricky Tickey
Frequent Contributor (1K+ posts)
Member # 26546
posted
Wow, great work guys!!
Looks like Georgia & Tennessee really have a bad problem. I expected the NE & California....also Florida is really heavy with Lyme.
Keep forwarding the link, yall! Please!
-------------------- Early Disseminated LD- 2010. Currently doing acupuncture and yoga. Negative Igenex (IND & Pos Bands) ISSUES AFTER: Tendonitis, letter reversal, Low immune system. PREVENTION:SaltC,Iodine,Humaworm, Chiropractic. Posts: 1013 | From In a van down by the river. | Registered: Jun 2010
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