Instead of typing it all here - I figured I would share this with you all. My goal is to spread the word about this horrible disease. I am also in the process of making a video about the treatment I am going through, but focusing on the positives. I look forward to getting to know you all
-James
Posted by Need Lots of Help (Member # 18603) on :
James,
It has been a hard road for most of us. I have been battling this disease for 20 years. Just in the last two years found a doctor to treat me.
I hope you can bring some awareness to lyme. Please keep mentioning it to everyone who will listen. Because the CDC and the ISDA do not recognize Lyme Disease.
Good luck with treatment.
Posted by lymeladyinNY (Member # 10235) on :
James, I'm so glad you got your story out there. It is so detailed and the wording really hits home.
What you've been through is awful - and I can fully relate. Good luck with all your endeavours!
- Lymelady Julie
Posted by bcb1200 (Member # 25745) on :
Your story sounds very familiar. I"m glad you are starting to feel better. (me too!)
Posted by slcd (Member # 5708) on :
It's so frustrating when you go to all of those doctors and have all of those tests and they tell you that they can't find anything wrong with you. Eventually they start looking at you like you're a hypochondriac or a pill seeker and they stop trying to help you. I was lucky and lived in an area where it was widely recognized when I was first ill. However, since moving south I can't find a doctor who believes in chronic Lyme Disease so when I have a new symptom they run these tests and tell me "it's all in my head" or try to diagnose me with something I KNOW I don't have when I KNOW it's a new symptom of the Lyme...
Posted by JamesGrandeMusic (Member # 27864) on :
I'll find a way to spread the word about Lyme. My hope is to do it without outing the Doctors who fail to diagnose, because I truly believe a lot of them are just uniformed and not malicious. (then of course there are a few stubborn doctors who are just absolutely horrible at helping people get well)
Posted by lou (Member # 81) on :
Best of luck with your treatment. The world needs musicians.
Having your story in the newspaper will have helped some of the readers find their own diagnoses.
Posted by John S (Member # 19756) on :
Unfortunately, welcome aboard the boat.
My story is similar to yours, but I found out I had Lyme much sooner and still couldn't find help or figure out where to go for it.
Posted by LightAtTheEnd (Member # 24065) on :
With the recent completely inaccurate Lyme story in Newsweek (see another post), it's good to see true story of an actual person described in the press. People get way too much wrong information from reading the paper or watching the news. I sent your story to my family. Every little bit of understanding they gain helps them cope with my illness better.
I'm glad you figured out it was Lyme.
Best wishes for your recovery, and thanks for sharing your story with the public.
Posted by John S (Member # 19756) on :
Unfortunately, Newsweek has a much wider circulation.
[ 09-02-2010, 11:10 AM: Message edited by: John S ]