posted
Instead of typing it all here - I figured I would share this with you all. My goal is to spread the word about this horrible disease. I am also in the process of making a video about the treatment I am going through, but focusing on the positives. I look forward to getting to know you all
It has been a hard road for most of us. I have been battling this disease for 20 years. Just in the last two years found a doctor to treat me.
I hope you can bring some awareness to lyme. Please keep mentioning it to everyone who will listen. Because the CDC and the ISDA do not recognize Lyme Disease.
Good luck with treatment.
Posts: 893 | From Florida | Registered: Dec 2008
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lymeladyinNY
Frequent Contributor (1K+ posts)
Member # 10235
posted
James, I'm so glad you got your story out there. It is so detailed and the wording really hits home.
What you've been through is awful - and I can fully relate. Good luck with all your endeavours!
- Lymelady Julie
-------------------- I want to be free Posts: 1170 | From Endicott, NY | Registered: Sep 2006
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bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
Your story sounds very familiar. I"m glad you are starting to feel better. (me too!)
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3139 | From Massachusetts | Registered: May 2010
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posted
It's so frustrating when you go to all of those doctors and have all of those tests and they tell you that they can't find anything wrong with you. Eventually they start looking at you like you're a hypochondriac or a pill seeker and they stop trying to help you. I was lucky and lived in an area where it was widely recognized when I was first ill. However, since moving south I can't find a doctor who believes in chronic Lyme Disease so when I have a new symptom they run these tests and tell me "it's all in my head" or try to diagnose me with something I KNOW I don't have when I KNOW it's a new symptom of the Lyme...
Posts: 415 | From Canton, GA United States | Registered: May 2004
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posted
I'll find a way to spread the word about Lyme. My hope is to do it without outing the Doctors who fail to diagnose, because I truly believe a lot of them are just uniformed and not malicious. (then of course there are a few stubborn doctors who are just absolutely horrible at helping people get well)
-------------------- Only those who suffer can grow into beauty Posts: 9 | From Narragansett, RI | Registered: Aug 2010
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posted
Best of luck with your treatment. The world needs musicians.
Having your story in the newspaper will have helped some of the readers find their own diagnoses.
Posts: 8430 | From Not available | Registered: Oct 2000
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My story is similar to yours, but I found out I had Lyme much sooner and still couldn't find help or figure out where to go for it.
Posts: 743 | From New York | Registered: Apr 2009
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posted
With the recent completely inaccurate Lyme story in Newsweek (see another post), it's good to see true story of an actual person described in the press. People get way too much wrong information from reading the paper or watching the news. I sent your story to my family. Every little bit of understanding they gain helps them cope with my illness better.
I'm glad you figured out it was Lyme.
Best wishes for your recovery, and thanks for sharing your story with the public.
-------------------- Don't forget to laugh! And when you're going through hell, keep going!
Bitten 5/25/2009 in Perry County, Indiana. Diagnosed by LLMD 12/2/2009. Posts: 756 | From Inside the tunnel | Registered: Jan 2010
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