LymeNet Flash: clear medical explanation of Lyme to give family/friends

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Posted by DeniseNM (Member # 11182) on :

Hi! Does anyone know of a document I can print out and hand to family/friends, etc. which explains Lyme disease, the testing problems, the controversy, etc.?

I'm looking for something that is clearly written, concise and hopefully containing references to medical journal articles.

I appreciate any input!

Posted by Keebler (Member # 12673) on :

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http://www.ilads.org/lyme_research/lyme_articles4.html

Lyme Disease: Two Standards of Care

by Lorraine Johnson, JD (revised 2005)

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http://www.clinicaladvisor.com/controversy-continues-to-fuel-the-lyme-war/article/117160/

From the May 2007 issue of Clinical Advisor The Clinical Advisor is a monthly journal for nurse practitioners and physician assistants in primary care. Home page: www.clinicaladvisor.com

CONTROVERSY CONTINUES TO FUEL THE "LYME WAR"

Discusses differences in the methods of the IDSA from those of ILADS

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http://www.angelfire.com/biz/romarkaraoke/whento.htm

When to Suspect Lyme - by  John D. Bleiweiss, M.D.

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http://www.canlyme.com/tom.html

The Complexities of Lyme Disease - A Microbiology Tutorial

- by Thomas M. Grier M.Sc.

If you search his name, you will see that he just finished a series of 5 more articles. But I'm not organized to remember how I filed those.

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http://www.lymedisease.org/news/lyme_disease_views/592.html

THE HUMAN FACE OF TICK-BORNE DISEASE - by Pamela Weintraub

October 11, 2010 at the Institute of Medicine (IOM) Talk on state-of-the-science Lyme workshop. She is author of CURE UNKNOWN

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http://tinyurl.com/5crsjv

CURE UNKNOWN: Inside the Lyme Epidemic (2008) - by Pamela Weintraub

This details what an entire family went through. Having this knowledge of their journey will help others to get better, faster treatment.

http://www.cureunknown.com

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http://www.underourskin.com

Documentary: UNDER OUR SKIN

(you can purchase for $35 at the site or see if you local lyme support group has a copy to lend.)

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http://www.lymeinfo.net/index.html

LYME INFO Website

* details about Lyme disease symptoms, diagnosis, treatment, and prevention

* peer-reviewed medical literature

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Regarding psychological and psychiatric matters caused by neurotoxic infections:

www.thehumansideoflyme.net

The Human Side of Lyme

Deliberations of a psychiatrist who evaluates and possibly diagnoses Lyme and other tick-borne diseases of the mind, sharing case histories . . . .

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http://www.lymedisease.org/

California Lyme Disease Association (CALDA) is a non-profit corporation acting as the central voice for all tick-borne disease issues. An excellent website for anyone in any state.

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http://www.publichealthalert.org/

PHA - Public Health Alert - an on-line newspaper devoted to education in the field of lyme and tick-borne disease.

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www.ilads.org

ILADS - International Lyme and Associated Diseases Society

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http://www.lymediseaseassociation.org/

Lyme Disease ASSOCIATION
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Posted by missing (Member # 22437) on :

The documentary "Under Our Skin"

from underourskin.com

"Cure Unknown" by Pamela Weintraub sold on Amazon

is the best explaination of this huge mess.

It is not simple enough to put into a document.

My family just doesn't get it, and they even watched "Under Our Skin"

I think a lot of people have problems here with getting their family to understand.
So, I don't think a document can do it.

You could print out every document that is posted on this Forum, and start a binder.
for your family to read.
I am doing that.

I was emailing them documents all year, and then I got a stupid comment from an IN-Law telling me that she read that all I need is vegetables, prayer and less stress!

She had time to read that ignorant book but not enought time to educate herself about how this illness makes me suffer everyday.

Also look for the post titled "Pamela Weintraub speaks to the IOM panel" I think it was posted last month. That is a great speach that she gave.
It is not enough but it tells our story in a nutshell.

Posted by Keebler (Member # 12673) on :

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As missing says, lyme is just too complex to contain to one document and there is nothing simple about it.

"Pamela Weintraub speaks to the IOM panel" is the 5th link in the set 2 posts above. THE HUMAN FACE OF TICK-BORNE DISEASE is the title.
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Posted by Keebler (Member # 12673) on :

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I would also ask them to get this book but, at least intently read the entire first chapter that has graciously been given to us by the author.
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http://www.lymebook.com/insights-lyme-treatment-strasheim-book

INSIGHTS INTO LYME DISEASE TREATMENT

- by Connie Strasheim

This book is based on interviews with 13 Lyme-Literate Health Care Practitioners. Each practitioner is given one chapter in which to share their healing strategies

http://www.lymebook.com/steven-harris

Sample Chapter from the book

Chapter 1 - by SH
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