This is topic Just need to vent in forum General Support at LymeNet Flash.


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Posted by cityroam1 (Member # 24787) on :
 
I have been struggling with what I think is lyme, for almost 3 years now. I have been getting treatment for a little over a year and I see no improvement. I spend each day in severe pain and constant feeling of flu like symptoms.

I've never tested positive for lyme with the "standard" testing, according to the Cleveland Clinic I didn't even have 1 positive band. But all of my problems started after getting a tick bite.

I have been to every "ologist" and they all agree that something is wrong but can't agree on what it is.

My llmd says I have lyme, but everyone else says no. I know that most dr's don't know anything about lyme but I am afraid that if there is something other than lyme I am not getting treatment.

I thought by now I would be seeing some improvement, but most of my days are spent lying on the couch. I struggle to do my job, I don't even think I could apply for disability because no dr. can even decide what's wrong with me. My llmd wont even write a letter for me. He says I'll never get it because I am too young. I am sure the stress of losing my job doesn't help my health.

I don't know what to think any more, I feel like there is no end to this and my life is falling apart. Some weeks I tell myself it's lyme and that's it, don't think about anything else. But then some new problem happens and then I start thinking "what if"..

I know that so many others have struggled for so much longer and I really should be thankful that it's only been 3 years, but damit I want my life back.
 

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Posted by momlyme (Member # 27775) on :
 
Have you looked into metals or molds? These can cause many of the same symptoms as tick borne diseases.

Have you tested for mycoplasmas?
HHV-6

Take some time off and detox.

Get a new doctor.

See an herbalist, naturopath or some sort of alternative practitioner.

These are all just suggestions. I am not a doctor.
 

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Posted by cityroam1 (Member # 24787) on :
 
Tested negative for metals, no mold.. I am not sure about mycoplasmas or HHV-6.. I have had a million tests done so I am sure they are in there somewhere.

I am on my 3rd LLMD already...

Thanks for the suggestions though.
 

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Posted by Hambone (Member # 29535) on :
 

quote:

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Originally posted by cityroam1:
But all of my problems started after getting a tick bite.

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