posted
I have been struggling with what I think is lyme, for almost 3 years now. I have been getting treatment for a little over a year and I see no improvement. I spend each day in severe pain and constant feeling of flu like symptoms.
I've never tested positive for lyme with the "standard" testing, according to the Cleveland Clinic I didn't even have 1 positive band. But all of my problems started after getting a tick bite.
I have been to every "ologist" and they all agree that something is wrong but can't agree on what it is.
My llmd says I have lyme, but everyone else says no. I know that most dr's don't know anything about lyme but I am afraid that if there is something other than lyme I am not getting treatment.
I thought by now I would be seeing some improvement, but most of my days are spent lying on the couch. I struggle to do my job, I don't even think I could apply for disability because no dr. can even decide what's wrong with me. My llmd wont even write a letter for me. He says I'll never get it because I am too young. I am sure the stress of losing my job doesn't help my health.
I don't know what to think any more, I feel like there is no end to this and my life is falling apart. Some weeks I tell myself it's lyme and that's it, don't think about anything else. But then some new problem happens and then I start thinking "what if"..
I know that so many others have struggled for so much longer and I really should be thankful that it's only been 3 years, but damit I want my life back. Posts: 75 | From NE Ohio | Registered: Mar 2010
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momlyme
Frequent Contributor (1K+ posts)
Member # 27775
posted
Have you looked into metals or molds? These can cause many of the same symptoms as tick borne diseases.
Have you tested for mycoplasmas? HHV-6
Take some time off and detox.
Get a new doctor.
See an herbalist, naturopath or some sort of alternative practitioner.
These are all just suggestions. I am not a doctor.
-------------------- May health be with you!
Toxic mold was suppressing our immune systems, causing extreme pain, brain fog and magnifying symptoms. Four days after moving out, the healing began. Posts: 2007 | From NY/VT Border | Registered: Aug 2010
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posted
Tested negative for metals, no mold.. I am not sure about mycoplasmas or HHV-6.. I have had a million tests done so I am sure they are in there somewhere.
I am on my 3rd LLMD already...
Thanks for the suggestions though.
Posts: 75 | From NE Ohio | Registered: Mar 2010
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Hambone
Frequent Contributor (1K+ posts)
Member # 29535
posted
quote:Originally posted by cityroam1: But all of my problems started after getting a tick bite.
Have you been tested again since being on antibiotics?
Posts: 1142 | From South | Registered: Dec 2010
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