LymeNet Flash: Need a hug

This is topic Need a hug in forum General Support at LymeNet Flash.

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Posted by grimmrimmer (Member # 29054) on :

Man, this blows. Every time I start to feel like I am getting over the hump, I get knocked down again. It's such a freaking tease!

I've been treating now for ~5 months and looking in the rear-view mirror I can definitely tell I am much better overall than I was. I used to spend so many nights just so depressed and wondering how I was going to live and be a father to my 1yr old son. I know I should use that as my motivation, but the brain stuff just really gets to me as it's really my only symptom. Of those, I would say that the tinnitus has to be the worst. It's a constant reminder (never lets up) that I am sick. Even when my other symptoms seem to fade, the tinnitus is like: "Hey! We're still here! Ha ha!".

I don't know... I am just so sick of the see-saw battle. Sorry to ask for encouragement from others on this board who are probably much worse off than I am, but I just don't know where else to turn. It seems impossible and frustratingly so for anyone else to "get" this disease. People I work with can't relate at all, so I've learned to just put a smile on my face as best I can, but I just feel like crying inside sometimes when it gets like this.

I've got a family to provide for and it's tough to just suck it up at times. Oh well... here's to hoping this low is my last.

Posted by fflutterby (Member # 28081) on :

I feel the same way. One step forward two steps back. I guess we just have to look at the long haul and not concentrate on the recent. I know I am better than I was prior to treatment but do feel as though it is getting more difficult recently. Hang in there, we will get through it.

Posted by fflutterby (Member # 28081) on :

(((hugs)))

Posted by momintexas (Member # 23391) on :

Hang in there, my friend. You WILL get better.

It took time for this disease to settle in and it will take time for your body to heal.

It's definitely a roller coaster ride, a ride I have wanted off of for a long time! [Wink]

Keep your chin up - I promise you will get better.

[group hug]

And don't forget.....we are right around the corner.....

Posted by Marine6624 (Member # 28052) on :

Grim , Nattokinase worked well for my brain stuff . I am praying for you [Smile]

Posted by grimmrimmer (Member # 29054) on :

Thanks for the well wishes. I really do appreciate them.

I am getting confident I will get normal again lately. It's just the so close, yet so far feeling that settles in and just ****es me off. Why can't it be relatively easy like the flu or strep throat???

Posted by nefferdun (Member # 20157) on :

It is difficult - I have my ups and downs too. Don't worry about asking for encouragement. We are here for each other.

Lately I have been feeling much better so there is hope. I have never been as sick as I was in the beginning of treatment.

Be sure you are treating all the co-infections. That was where I went wrong. The first year I thought I only had Bb, the second year it was Bb and bart. Last year I found out I also have ehrlichia and babesia. As soon as I knocked one down, another popped up.

You are so lucky to have a one year old - they are just so cute and fun. But they can tire you out when you are healthy so I know it is hard to keep up. Hope you feel better soon.

Posted by farraday (Member # 21494) on :

[group hug]

Posted by Lymetoo (Member # 743) on :

Yes.. make sure you are addressing coinfections!!

Hang in there and keep on keeping on!! The head stuff is awful and VERY hard to conquer.

Hoping you will have a good week, grim!

[group hug]

Posted by Defender (Member # 26546) on :

I'll give you a hug...needing one myself!!!

H-U-G