I had to take my kids to urgent care the other evening for pink eye and fevers and I got to talking to the doctor about my history with lyme disease. He is very eager to learn the truth about chronic lyme and was sincerely baffled by that lack of medical support for those with lyme. I told him to watch UOS and check out lymenet and a few blogs, but I want him to really "get it". He made the comment that the insurance companies have rallied together to put up a fight and that its unfortunate that doctors don't do the same. He suggested the potential power they (the doctors) would have if they would just join forces and fight for us. I was surprised and impressed.
What should I tell him to do if he is truly interested in learning the truth about chronic lyme? Wouldn't that be awesome if even urgent care docs believed and understood what we were going thru? Posted by HopesAlive (Member # 29774) on :
I had an encounter with a nurse when I called into nurseline about a possible broken toe (a few weeks ago).
We never know when we get the chance to educate, and YAY for the ER doctor who wants to learn more! The same happened to me with this nurse, and she took down the name of UOS, plus Cure Unknown by Pamela Weintraub. For me, those were good places to start.
I would also tell him to refer to ILADS website. That is the website my NEW doctor wrote down for me to hand to my regular physician. Great places to begin and he can branch out from there.
As we all know, it is easy to get overwhelmed. I have been doing some research today, and I feel like my brain is ready to burst, lol.
Anyway, when I was finished talking with the nurse on Nurseline, I felt so good! I thought, "if I save even ONE person from having to go through what I have gone through my entire life," I will be happy. This nurse, I could tell, was not one who was asking for info to please me. I could tell she was TRULY interested. She even talked about doing a review of the book and/or movie in the nurses' newsletter that she can contribute to.
We hear of so many uninterested docs, those who already "know it all" and look at us like we are crazy, so it is very encouraging to hear the opposite, positive story for once!
Thank you for sharing! Posted by Lymetoo (Member # 743) on :
Get him a copy of Burrascano's guidelines. I'll post a few links later for you.
When I was in the ER, the ER doc also seemed interested or at least concerned enough to seem caring of my situation. Maybe urgent care/ER docs are a little more educated than family doctors who don't seem to give a rat's behind about lyme and co.
Posted by t9im (Member # 25489) on :
I have a few links I'll post tomorrow as I always find it best to show video's on the Diagnosis and Treatment of Lyme Disease and other TBD's.
One video has Sam Donata the Infectious Disease MD kicked off the Lyme IDS committee which set the guidelines.
This really started with AS at Yale and I'm not sure if it was due to the vaccine development or just the opportunity he saw for rheumotologists by limiting the diagnosis.
It really isn't the insurance companies per se. They just jumped on the bandwagon after the NIH and AS & GW limited the diagnois and defined the treatment / cure.
IMO mainstream MD's risk too much from a career and revenue standpoint which is why so few become LLMD's. They may start out looking at this but not many end up being helpful.
Posted by Dekrator48 (Member # 18239) on :
Turn the Corner Foundation has a Physician training program if he is interested in that:
![[group hug]](graemlins/grouphug.gif)
![[Smile]](smile.gif)