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» LymeNet Flash » Questions and Discussion » General Support » Can you help me find BASIC information?

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Author Topic: Can you help me find BASIC information?
HopesAlive
LymeNet Contributor
Member # 29774

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Hello Friends,

I am looking for a couple of print outs that I could share with my mom.

Here is the situation: my mom is 82 years old, and she does believe and understand I have Lyme disease. What she does not understand is why I am not able to just be treated and "be all better."

I am going the "naturals" route, and I did find a good, basic print out about my meds to share with her.

What I am looking for is something that will explain Lyme in layperson's terms, and will also explain why it may take a long time (months, years) to become well again.

She keeps telling me that two of her friends had Lyme disease, and one even had it for a long time before they caught it and they took antibiotics and they are fine now. For the friend of hers who had it a long time, she relapsed one time, went back on abx, and she is fine now.

So, my mom is having trouble understanding why this will take time. I did also explain the herxheimer reaction to her and about toxins building, but she still says, "I don't know why you aren't just taking medicine and getting better. I don't understand why this takes so long. Are you sure this doctor knows what she is doing giving you those drops, etc.?"

I can't really find anything that will explain to her, in simple terms, why I may be in for the fight of my lifetime. I don't want her to be afraid, just informed.

If anyone has a link to an article or any other ideas/suggestions, I am open to them.

Thank you in advance! [Smile]

--------------------
Best Wishes,

Hope

"Hope is a good thing, maybe the best of things, and no good thing ever dies."

~~The Shawshank Redemption~~

Posts: 234 | From Minnesota | Registered: Dec 2010  |  IP: Logged | Report this post to a Moderator
HopesAlive
LymeNet Contributor
Member # 29774

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Oh, and I plan to PRINT out a few things, along with the article about my Nutramedix drops and mail to her, so she can read and understand.

I just cannot seem to explain it to her in a way she is understanding.

--------------------
Best Wishes,

Hope

"Hope is a good thing, maybe the best of things, and no good thing ever dies."

~~The Shawshank Redemption~~

Posts: 234 | From Minnesota | Registered: Dec 2010  |  IP: Logged | Report this post to a Moderator
James1979
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How about the article on this thread here:
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=3;t=027895;p=0
?

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Lymetoo
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The one James posted is excellent!

more here:

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/88555?

--------------------
--Lymetutu--
Opinions, not medical advice!

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lyme in Putnam
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A friend of mine has a website
http://lymehandbook.com/

As she reads things like this, she'll understand.

--------------------
He took u to it, He'll you through

Posts: 2837 | From NE. | Registered: Apr 2007  |  IP: Logged | Report this post to a Moderator
Dekrator48
Frequent Contributor (5K+ posts)
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I think this is one of the best easy-to-read and understand booklets on the basics of lyme:


http://www.lymepa.org/Basics2007v1.2Rev.pdf

--------------------
The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.

"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11

Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008  |  IP: Logged | Report this post to a Moderator
randibear
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dr. s. has a wonderful book that is easy to read, large print for lyme patients.

it runs about 15-20 i think.

--------------------
do not look back when the only course is forward

Posts: 12262 | From texas | Registered: Mar 2007  |  IP: Logged | Report this post to a Moderator
HopesAlive
LymeNet Contributor
Member # 29774

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Thank you for all the responses!

I am very worn out, and I am heading to bed, but I will be checking out all the links tomorrow and choose one or two to print. Or possibly send her a link to the blog/website, or whatever I choose.

I know if it is "too much," she will become overwhelmed and just stop reading or not read at all. She is very intelligent and an avid reader, she has an active mind at 82 years, but I still feel it has to explain things simply and to the point. I know she will not do the extensive reading and research that I try to do.

I don't know why I am having such a hard time explaining this aspect to her, either. Probably because she just chimes in with her two examples, lol, and then immediately questions my doctor's judgement. She has come a long way in opening up and understanding more about integrative medicine, but I am sure she just worries because this involves me.

Thanks, again, everyone! [Smile]

--------------------
Best Wishes,

Hope

"Hope is a good thing, maybe the best of things, and no good thing ever dies."

~~The Shawshank Redemption~~

Posts: 234 | From Minnesota | Registered: Dec 2010  |  IP: Logged | Report this post to a Moderator
t9im
Frequent Contributor (1K+ posts)
Member # 25489

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It's amazing there is a controversy to this insidious disease and I've found it easiest to show a couple of u tube video's on the controversy.

http://www.youtube.com/watch?v=PVPRWiukp_M

http://www.youtube.com/watch?v=8yk0C-uX9cU

If you watch this video you can see some of the miss diagnosis.

http://www.youtube.com/watch?v=3nIuIF6q8FA&feature=related

--------------------
Tim

Posts: 1111 | From Glastonbury, CT | Registered: Apr 2010  |  IP: Logged | Report this post to a Moderator
lululymemom
Frequent Contributor (1K+ posts)
Member # 26405

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I find the CanLyme website the best for getting to the point and showing the variety of symptoms it presents with.

www.canlyme.com

--------------------
IGM 41 IND, 83-93+ IGG 31 IND,34 IND, 41++, 58+, 83-93 IND

31 Epitope test neg.

Bartonella henselae 1:100

Posts: 2027 | From British Columbia | Registered: Jun 2010  |  IP: Logged | Report this post to a Moderator
   

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