(sorry - posted it in the Dr. forum before by mistake)
Posted by JeniferM (Member # 31996) on :
Hmm... a bit slow going. I wonder if they are just slow typers or if they are sort of waiting to see what the other guy says first?
Dr. Z says "Previous research has shown that at least 50 percent of people with "chronic Lyme Disease" never had Lyme Disease in the first place." Is that true? That's a really high percentage.
[ 07-01-2011, 01:29 PM: Message edited by: JeniferM ]
Posted by juliet70 (Member # 32553) on :
Wow - this 'chat' is a bit of a train wreck!
Posted by JeniferM (Member # 31996) on :
I agree :-)
Dr. Z then mentioned "One lab in California has not been shown to produce reliable results." I wonder which one that is?
[ 07-01-2011, 01:29 PM: Message edited by: JeniferM ]
Posted by James1979 (Member # 31926) on :
I wish I would have just waited and downloaded the finished manuscript. But now I'm hooked and wasting time following this slow chat.
Too bad Dr C is much slower at replying than Dr Z.
Posted by JeniferM (Member # 31996) on :
Yeah, I also wish I had just waited and downloaded the transcript.
Posted by Lymetoo (Member # 743) on :
moving to general support
Posted by James1979 (Member # 31926) on :
I think that was pretty much a waste of time. I regret that I followed it. It was the same old same old, and not much of it.
The surprising thing was how Dr. Z kept saying that the Lyme tests are very accurate. Too bad both sides of the debate agree that the tests are INACCURATE, so I don't know what he's talking about. Even the CDC, and the test-kit manufacturers themselves, say that the tests are unreliable. Why then is Dr. Z saying that the tests are reliable? If that is his only defense, then he has already lost.
Posted by t9im (Member # 25489) on :
I couldn't listen in as listening to Z would only make my blood boil.
Posted by ktkdommer (Member # 29020) on :
I was boiling also and kept sending in messages. One of them did get posted under Kari about my family of 5 with Lyme. Dr. Z recommended we see a university clinic.
What didn't get posted was my response saying that one HUGE university said I had lupus in 1999 and when my son was 14 the other HUGE university said he had fibromyalgia.
I am hoping the doctors were able to read all the posts coming in.
I tried searching for Dr. Z's email online so I could properly let him know what I thought of today's conversation. I couldn't find it.
I could not believe when Dr. Z said it would be 2 more years before new treatment protocol comes out. Dr. C. said they were working on new publications. Yeah!