posted
Hmm... a bit slow going. I wonder if they are just slow typers or if they are sort of waiting to see what the other guy says first?
Dr. Z says "Previous research has shown that at least 50 percent of people with "chronic Lyme Disease" never had Lyme Disease in the first place." Is that true? That's a really high percentage.
-------------------- IgM: [18++,31+++,34++,41++,83-93+] [39 IND] IgG: [41 IND] Positive according to IGeneX. Negative according to CDC. Negative for co-infections. Currently treating for Lyme, Bartonella, Babesia Posts: 225 | From Minnesota | Registered: May 2011
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-------------------- IgM: [18++,31+++,34++,41++,83-93+] [39 IND] IgG: [41 IND] Positive according to IGeneX. Negative according to CDC. Negative for co-infections. Currently treating for Lyme, Bartonella, Babesia Posts: 225 | From Minnesota | Registered: May 2011
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James1979
Unregistered
posted
I wish I would have just waited and downloaded the finished manuscript. But now I'm hooked and wasting time following this slow chat.
Too bad Dr C is much slower at replying than Dr Z.
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posted
Yeah, I also wish I had just waited and downloaded the transcript.
-------------------- IgM: [18++,31+++,34++,41++,83-93+] [39 IND] IgG: [41 IND] Positive according to IGeneX. Negative according to CDC. Negative for co-infections. Currently treating for Lyme, Bartonella, Babesia Posts: 225 | From Minnesota | Registered: May 2011
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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James1979
Unregistered
posted
I think that was pretty much a waste of time. I regret that I followed it. It was the same old same old, and not much of it.
The surprising thing was how Dr. Z kept saying that the Lyme tests are very accurate. Too bad both sides of the debate agree that the tests are INACCURATE, so I don't know what he's talking about. Even the CDC, and the test-kit manufacturers themselves, say that the tests are unreliable. Why then is Dr. Z saying that the tests are reliable? If that is his only defense, then he has already lost.
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t9im
Frequent Contributor (1K+ posts)
Member # 25489
posted
I couldn't listen in as listening to Z would only make my blood boil.
-------------------- Tim Posts: 1111 | From Glastonbury, CT | Registered: Apr 2010
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ktkdommer
Frequent Contributor (1K+ posts)
Member # 29020
posted
I was boiling also and kept sending in messages. One of them did get posted under Kari about my family of 5 with Lyme. Dr. Z recommended we see a university clinic.
What didn't get posted was my response saying that one HUGE university said I had lupus in 1999 and when my son was 14 the other HUGE university said he had fibromyalgia.
I am hoping the doctors were able to read all the posts coming in.
I tried searching for Dr. Z's email online so I could properly let him know what I thought of today's conversation. I couldn't find it.
I could not believe when Dr. Z said it would be 2 more years before new treatment protocol comes out. Dr. C. said they were working on new publications. Yeah!
-------------------- Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome. Posts: 1366 | From Perrysburg, Ohio | Registered: Nov 2010
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