After spending 2 1/2 years bedridden from this disease I understand the struggle, fear and lonliness associated. I suggest to those who are very sick to start a journal of daily/weekly activity. Treatment can be slow and the journal will be a tool to look back and understand the improvements made from month to month and year to year. Sometimes it seems endless and a journal, however little you are able to write daily or weekly, is essential. It will help you see progress and understand the changes occuring. I hope this helps and am always available at [email protected]
Blessings, Trish
Posted by fflutterby (Member # 28081) on :
Trish, I keep one and yes, on the bad days it helps to look back at my progress. Are you well now ?
Posted by lpkayak (Member # 5230) on :
good idea. it can also be helpful for doc appts wehn memory fails...
Posted by TrishM (Member # 28976) on :
Yes, fflutterby I am much better now. I Founded and run S.L.A.M. (Sturbridge Lyme Awarenes of MA) and "Ribbons Across America" ribbon campaign.
Learning to live in remission and maintain my health and new normal. Life is good.