Havent a clue what happened. Belonged to this site and succesfully answered tons of questions re: lyme and cos.
It was titled with your states name and called a online support group.
Said had to write short essay as to why you want to re join. I asked why?after all these years? Just said you HAVE to so did.
Seems maybe the toads have gained that site as well.
Said I had it and wanted to help others,,,,denied,,,no more reasons etc.
Seemed to run all states together since not divided up. So yours probably said 'your state'lyme support group on Yahoo answers.
Anyone else get the magic boot? for giving too many 'right' answers?
Posted by nru (Member # 35247) on :
Yep - couple of days ago - don't know what is going on there.
Posted by MADDOG (Member # 18) on :
I would try to log in from somewere else under a different name.
I once had a program to erace my IP,it is outdated now.
MADDOG
Posted by kidsgotlyme (Member # 23691) on :
I think I tried to join that site once, and they wouldn't grant me access. It was weird.
Posted by Tricky Tickey (Member # 26546) on :
Hmmmmmm. Yahoo groups? I am a member of my state's Yahoo Group. It's just called "******** Lyme" and has about 30 members, not very active. There is a good introduction to it, with the typical disclaimer at the bottom about not giving medical advice.
I hope they don't try to shut us down, or something.
Posted by pmerv (Member # 1504) on :
just don, if you are talking about one of LymeDisease.org's state groups, no one has to write an essay but just say which state you live in and briefly state why you want to join. Requiring this prevents spammers from joining the groups.
If you did that and your application was denied, the moderator may have missed your email and you should apply again or email the moderator.
We get a huge number of emails. Most moderators have Lyme themselves. Sometimes people do get denied by mistake.
I apologize if this happened to you on one of our groups.
Posted by seibertneurolyme (Member # 6416) on :
Phyllis,
I posted under medical a couple of days ago. I can't access the lymedisease.org website.
You may want to check and see if something is going on with your servers.
I just get a message that the address is invalid.
Have been trying for 3 days now. I don't have problems with any other websites -- just yours at www.lymedisease.org
Bea Seibert
Posted by kam (Member # 3410) on :
Must be a glitch in the system JD
Posted by Tincup (Member # 5829) on :
Join the club!
Tutu and I were booted off the MS group (I believe it was MS) a number of years ago. They didn't want their "valued" customers (patients) that they had convinced had MS to know they might have Lyme and it was missed by their genius doctors.
The MS groups (as are some others) are NOT at all friendly to Lyme info, even though our total intention is not to "steal" their customers, but to sincerely help people.
To various "disease support groups", anything that threatens their income (donations) is a big no-no. I've never seen anything like it before. And it is so sad for the patients.
Or.. on second thought... maybe they know you and that's why you were booted off?
Posted by randibear (Member # 11290) on :
i was told on one board, can't remember which one, something boards and then you scroll down to the medical topic you want.
anyway i was told to stop pushing lyme and basically to shut the crap up.
i left voluntarily because they were not receptive at all to anything other than fibro.
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