Most regular doctors or hospitals deny it's existence, while if one goes into the Agricultural Extension office or a vets office there are warning posters everywhere about ticks and Lyme.
Posted by Muscle Car55 (Member # 34707) on :
Health Department in Michigan just issued a Tick Alert, made a post about it.
From my experience the state of MI is one of the worst to handle the disease.
None of the doctors and hospitals in my area are testing for it.
P!ss poor management.
Just keep handing out those MS, ALS, Lupus diagnoses like candy Michigan docs.
Going to be so many sick people, see no sign of hope for the state.
3 LLMDs in the state, last time I checked, 2 are fully booked.
Posted by k84 (Member # 32738) on :
quote:Originally posted by Muscle Car55:
3 LLMDs in the state, last time I checked, 2 are fully booked.
I found that out 2 years ago when I first sought out a LLMD. I get to drive 12 hours one way to see my LLMD.
Posted by Muscle Car55 (Member # 34707) on :
Truly am sorry, this sh!t has to change!!!!
Hope it catches up with the ones ruining peoples lives. I don't care, I'm sick of people saying I don't wish this disease on my worse enemy! I do!!!
Deniability is just as bad as killing someone! Especially if it results in death.
Posted by Atta (Member # 30786) on :
My cousin's wife has an ALS diagnosis. Her doctor in MI mentioned that maybe they should retest her for Lyme-down the road!-because she mentioned that years ago she had a tick attached for over 48 hours and there was a rash.
She won't listen to me or my family, only the docs and thanks to the lack of awareness in Michigan will not pursue it any farther even though her ALS isn't progressing like ALS does and even though I have sent her articles where people have had similar "undiagnosed" problems that were in fact Lyme.
She has chosen to buy into the belief as well that Lyme is not real even though she can now barely walk. It's sad to know she may die soon because of medical ignorance.
Last year my Dad, a retired D.O, attended a conference in MI. The topic of Lyme came up and he later mentioned in conversation with a neurosurgeon that his daughter has chronic Lyme. The neurosurgeon all full of ego and superiority looked him in the eye and declared that there is no such thing as chronic Lyme and that Lyme does not exist in Michigan. My Dad looked him right back and told him that he was wrong on both accounts.
I agree that denial is just as bad as killing someone-at least once you acquire the knowledge and awareness of something.
Years ago, as with other diseases, doctors truly were in the dark and therefore not at fault. Now, in the medical community a doctor can no longer claim ignorance-there is more than enough information out there to know that this is a very serious issue plaguing many.
Choosing purposeful ignorance over awareness makes these doctors responsible for the decline and deaths of their patients.
I think it will change MuscleCar, but unfortunately, because egos/power/money are at the center of this debate, many more people will have to die before the change we'd like to see takes place.
And even then that change will also revolve around ego/power/profit and still won't totally be in the best interest of the person with Lyme. My 2cents.
[ 06-10-2013, 12:24 PM: Message edited by: Atta ]
Posted by Atta (Member # 30786) on :
Also, just gave advice to a guy who was bitten by a tick in Lansing, MI. He had the rash, flu-like symptoms, went to his doctor who actually agreed it was Lyme and gave him 2 weeks of amoxicillan.
Seriously?! I gave him the name of my previous LLMD and told him to demand 6 weeks of doxy. Ignorant indeed.
Posted by payne (Member # 26248) on :
next time I go to ER, I am gonna make sure I wear my Go Michigan ! lyme shirt...... Posted by Pocono Lyme (Member # 5939) on :
When I first got diagnosed, all physicians I saw other than my LLMD didn't believe it.
I couldn't find anyone in my area who had Lyme. My PCP kept an open mind but voiced his concerns over long term antibiotics.
Now my PCP puts chronic lyme as my main diagnosis. He now looks for it and has treated pretty aggressively.
I'm hearing more and more about lyme locally and so many suffering.
The really really sad and sickening part of it is doctors around here are OFTEN testing for Lyme.
BUT... You know the rest. The sad and sickening part.
Negative tests. Nothing.
Positive ELISA > WB Negative > Nothing.
+ELISA > +WB > At most 28 days of treatment and DONE.
I've recently been seeing a new ENT and he told me how debilitating lyme can be and chronic.
We are making a difference getting the word out but we need better testing and treatment.
Posted by Pocono Lyme (Member # 5939) on :
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