Most regular doctors or hospitals deny it's existence, while if one goes into the Agricultural Extension office or a vets office there are warning posters everywhere about ticks and Lyme.
Posts: 108 | From Rural Michigan | Registered: Jul 2011
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3 LLMDs in the state, last time I checked, 2 are fully booked.
I found that out 2 years ago when I first sought out a LLMD. I get to drive 12 hours one way to see my LLMD.
Posts: 108 | From Rural Michigan | Registered: Jul 2011
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posted
My cousin's wife has an ALS diagnosis. Her doctor in MI mentioned that maybe they should retest her for Lyme-down the road!-because she mentioned that years ago she had a tick attached for over 48 hours and there was a rash.
She won't listen to me or my family, only the docs and thanks to the lack of awareness in Michigan will not pursue it any farther even though her ALS isn't progressing like ALS does and even though I have sent her articles where people have had similar "undiagnosed" problems that were in fact Lyme.
She has chosen to buy into the belief as well that Lyme is not real even though she can now barely walk. It's sad to know she may die soon because of medical ignorance.
Last year my Dad, a retired D.O, attended a conference in MI. The topic of Lyme came up and he later mentioned in conversation with a neurosurgeon that his daughter has chronic Lyme. The neurosurgeon all full of ego and superiority looked him in the eye and declared that there is no such thing as chronic Lyme and that Lyme does not exist in Michigan. My Dad looked him right back and told him that he was wrong on both accounts.
I agree that denial is just as bad as killing someone-at least once you acquire the knowledge and awareness of something.
Years ago, as with other diseases, doctors truly were in the dark and therefore not at fault. Now, in the medical community a doctor can no longer claim ignorance-there is more than enough information out there to know that this is a very serious issue plaguing many.
Choosing purposeful ignorance over awareness makes these doctors responsible for the decline and deaths of their patients.
I think it will change MuscleCar, but unfortunately, because egos/power/money are at the center of this debate, many more people will have to die before the change we'd like to see takes place.
And even then that change will also revolve around ego/power/profit and still won't totally be in the best interest of the person with Lyme. My 2cents.
[ 06-10-2013, 12:24 PM: Message edited by: Atta ]
-------------------- Just a catepillar, full of imaginal buds. Posts: 143 | From Philadelphia, PA | Registered: Mar 2011
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posted
Also, just gave advice to a guy who was bitten by a tick in Lansing, MI. He had the rash, flu-like symptoms, went to his doctor who actually agreed it was Lyme and gave him 2 weeks of amoxicillan.
Seriously?! I gave him the name of my previous LLMD and told him to demand 6 weeks of doxy. Ignorant indeed.
-------------------- Just a catepillar, full of imaginal buds. Posts: 143 | From Philadelphia, PA | Registered: Mar 2011
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payne
Frequent Contributor (1K+ posts)
Member # 26248
posted
next time I go to ER, I am gonna make sure I wear my Go Michigan ! lyme shirt......
-------------------- TULAREMIA/rabbit fever ? Posts: 1931 | From mid-michigan | Registered: Jun 2010
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Pocono Lyme
Frequent Contributor (1K+ posts)
Member # 5939
posted
When I first got diagnosed, all physicians I saw other than my LLMD didn't believe it.
I couldn't find anyone in my area who had Lyme. My PCP kept an open mind but voiced his concerns over long term antibiotics.
Now my PCP puts chronic lyme as my main diagnosis. He now looks for it and has treated pretty aggressively.
I'm hearing more and more about lyme locally and so many suffering.
The really really sad and sickening part of it is doctors around here are OFTEN testing for Lyme.
BUT... You know the rest. The sad and sickening part.
Negative tests. Nothing.
Positive ELISA > WB Negative > Nothing.
+ELISA > +WB > At most 28 days of treatment and DONE.
I've recently been seeing a new ENT and he told me how debilitating lyme can be and chronic.
We are making a difference getting the word out but we need better testing and treatment.
-------------------- 2 Corinthians 12:9-11
9 But he said to me, �My grace is sufficient for you, for my power is made perfect in weakness.� Therefore I will boast all the more gladly about my weaknesses, so that Christ�s power may rest on me. Posts: 1445 | From Poconos, PA | Registered: Jul 2004
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Pocono Lyme
Frequent Contributor (1K+ posts)
Member # 5939
posted
Payne are you following me? You are funny!
-------------------- 2 Corinthians 12:9-11
9 But he said to me, �My grace is sufficient for you, for my power is made perfect in weakness.� Therefore I will boast all the more gladly about my weaknesses, so that Christ�s power may rest on me. Posts: 1445 | From Poconos, PA | Registered: Jul 2004
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