Take a good look at this, because they might be actually describing Lyme patients.
The article is discussing two tests, one done at Ohio State and the other in Santa Monica, CA.
I think we ought to contact them. I'm going to try...
Posted by lax mom (Member # 38743) on :
Why would they need a test for something they just throw anti-depressants and NSAIDS at?
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by Robin123: Take a good look at this, because they might be actually describing Lyme patients.
- Sure they are. They just don't know it.
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by lax mom: Why would they need a test for something they just throw anti-depressants and NSAIDS at?
- Indeed
Posted by Keebler (Member # 12673) on :
- Why "develop" a test for something that does not even exist, other than as a made-up medical MISdiagnosis -
- that would be best really to just describe - not diagnose - a constallation of pain & all that goes with that (due to other cause) that any patient who has can TELL a doctor they have. To me, FM is a group of symptoms - that points to something much more serious.
Doctors usually hate to believe any patients who tell them what they are actually experiencing. Patients are so often seen as lying - but they are not.
A good doctor will listen to a patient and believe that the patient can adequately convey symptoms. But we are very short on good doctors and those doctors who value patient communication are very rare.
Tests for "FM" will make them a lot of money. More money for makers and sellers of drugs that don't get to the cause, too. More money for dctors who won't do their job.
Mostly, why, is to "disprove" it's lyme in the eyes of the idiots. If there is a "test" for FM, they can drop the ball on any further detective work and more systematically throw more people with the FM label under the bus. -
[ 07-29-2013, 04:52 PM: Message edited by: Keebler ]
Posted by Robin123 (Member # 9197) on :
What Keebler said. To prolong their opportunity to make a lot of money off of us, and not have to pay for Lyme care.
So, the tests describe amino acids, chemokines and cytokines. What surprised me was the second one saying that chemokines/cytokines are less in the fibro patients. I would think they'd be more!
Posted by Lymetoo (Member # 743) on :
Yep.
Posted by lpkayak (Member # 5230) on :
Yep again
Posted by randibear (Member # 11290) on :
my doc said fibro was essentially impossible to treat because it's all symptoms and not a "real" illness.
well "lyme" is real. which is hysterical because he believes in chronic fatigue..
go figure...
i think the only valid test is from igenex.
Posted by Keebler (Member # 12673) on :
- randibear,
sounds like a doctor who is not very well educated about the nuances & constellations of symptoms connected to stealth infection. -
Posted by randibear (Member # 11290) on :
yes indeed. i've tried and tried and it's like talking to a brick wall. that's why i have an appt with a new doc in september.
fibro is a collection of symptoms, true, but most of the time it IS lyme.
Posted by Lymetoo (Member # 743) on :
Randi.. you're talking about your GP, aren't you?
Posted by randibear (Member # 11290) on :
yes, hon, the gp. he's been treating the divert disease also as i can't get in with my gastro.
but i have to admit he's referred me to a cardiologist at baylor because of some heart issues and that's good.
but he makes me sooooo angry....he's really very very likeable but you mention lyme and the door slams shut.
i did go to the one llmd in denton but frankly, we had a falling out, and i quit. my bad.... no way....i won't discuss particulars onboard here.