quote:Originally posted by lax mom: Why would they need a test for something they just throw anti-depressants and NSAIDS at?
- Indeed
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Keebler
Honored Contributor (25K+ posts)
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posted
- Why "develop" a test for something that does not even exist, other than as a made-up medical MISdiagnosis -
- that would be best really to just describe - not diagnose - a constallation of pain & all that goes with that (due to other cause) that any patient who has can TELL a doctor they have. To me, FM is a group of symptoms - that points to something much more serious.
Doctors usually hate to believe any patients who tell them what they are actually experiencing. Patients are so often seen as lying - but they are not.
A good doctor will listen to a patient and believe that the patient can adequately convey symptoms. But we are very short on good doctors and those doctors who value patient communication are very rare.
Tests for "FM" will make them a lot of money. More money for makers and sellers of drugs that don't get to the cause, too. More money for dctors who won't do their job.
Mostly, why, is to "disprove" it's lyme in the eyes of the idiots. If there is a "test" for FM, they can drop the ball on any further detective work and more systematically throw more people with the FM label under the bus. -
[ 07-29-2013, 04:52 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
What Keebler said. To prolong their opportunity to make a lot of money off of us, and not have to pay for Lyme care.
So, the tests describe amino acids, chemokines and cytokines. What surprised me was the second one saying that chemokines/cytokines are less in the fibro patients. I would think they'd be more!
Posts: 13116 | From San Francisco | Registered: May 2006
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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lpkayak
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posted
Yep again
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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randibear
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posted
my doc said fibro was essentially impossible to treat because it's all symptoms and not a "real" illness.
well "lyme" is real. which is hysterical because he believes in chronic fatigue..
go figure...
i think the only valid test is from igenex.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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Keebler
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posted
- randibear,
sounds like a doctor who is not very well educated about the nuances & constellations of symptoms connected to stealth infection. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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randibear
Honored Contributor (10K+ posts)
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posted
yes indeed. i've tried and tried and it's like talking to a brick wall. that's why i have an appt with a new doc in september.
fibro is a collection of symptoms, true, but most of the time it IS lyme.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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