LymeNet Flash: video montage from SF Lyme protest

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Posted by jblral (Member # 8836) on :

http://www.youtube.com/watch?v=M1X4zDZkI_4

Posted by Robin123 (Member # 9197) on :

From the October 5 SF protest rally, with the very lively Lyme rapper song as background. I'm in it about 2/3s through, with my comment about you're right, it is in our head...

Also note Phyllis Mervine, founder of LymeDisease.org, saying she started the Lyme Times with two stapled folded legal-size papers! There's hope for humble beginnings...

If you look closely, you'll see Andy Abrahams Wilson filming, and also Kris Newby from UOS.

Posted by pmerv (Member # 1504) on :

I don't think they were stapled.

Posted by Robin123 (Member # 9197) on :

Phyllis! You just made me laugh today! So you had two unstapled legal-size papers?! Ok, I know - there were no staplers around then - [Wink]

Posted by Lymetoo (Member # 743) on :

[lol]

Posted by Lymetoo (Member # 743) on :

I saw you, Robin! [Smile]

I could have done without the rapper since I couldn't understand a word he said.

Posted by surprise (Member # 34987) on :

Of course Robin was the funny one :-)
Very cool the service work- thank you.

Posted by Robin123 (Member # 9197) on :

Thx - I enjoy dishing it back!

I've been known to wait till a doctor says there's no Lyme, or not much Lyme in CA, and suddenly they find themselves holding in their hand 10 different Lyme brochures I was holding under my coat!

The rapper made some poignant comments, like he looks young, but can barely walk two blocks and no one knows that, to look at him - again, that ole invisible disability thing...

Dorothy put a lot of work into organizing the rally.

We have a Lyme patient who spoke who's also an atty helping Lyme patients get disability.

Jordan Fisher Smith spoke about being invited to speak to a large crowd in Oslo, Norway. He had us chant: "We are not patient" anymore re needing help.

I spoke about coming to San Francisco in 1982 and how I was very aware of the AIDS crisis, and the AIDS Act-Up groups as they advocated for treatment and community services.

Now people are living with AIDS because they have med cocktails, and there's a lot of community service organizations.

And I asked: So what about us? Isn't it our turn now?

Btw, Andy Abrahams Wilson made a film after the UOS film on the AIDS grove in Golden Gate Park - a circular remembrance site.