posted
From the October 5 SF protest rally, with the very lively Lyme rapper song as background. I'm in it about 2/3s through, with my comment about you're right, it is in our head...
Also note Phyllis Mervine, founder of LymeDisease.org, saying she started the Lyme Times with two stapled folded legal-size papers! There's hope for humble beginnings...
If you look closely, you'll see Andy Abrahams Wilson filming, and also Kris Newby from UOS.
Posts: 13116 | From San Francisco | Registered: May 2006
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pmerv
Frequent Contributor (1K+ posts)
Member # 1504
posted
I don't think they were stapled.
-------------------- Phyllis Mervine LymeDisease.org Posts: 1808 | From Ukiah, California, USA | Registered: Aug 2001
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Phyllis! You just made me laugh today! So you had two unstapled legal-size papers?! Ok, I know - there were no staplers around then - Posts: 13116 | From San Francisco | Registered: May 2006
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I've been known to wait till a doctor says there's no Lyme, or not much Lyme in CA, and suddenly they find themselves holding in their hand 10 different Lyme brochures I was holding under my coat!
The rapper made some poignant comments, like he looks young, but can barely walk two blocks and no one knows that, to look at him - again, that ole invisible disability thing...
Dorothy put a lot of work into organizing the rally.
We have a Lyme patient who spoke who's also an atty helping Lyme patients get disability.
Jordan Fisher Smith spoke about being invited to speak to a large crowd in Oslo, Norway. He had us chant: "We are not patient" anymore re needing help.
I spoke about coming to San Francisco in 1982 and how I was very aware of the AIDS crisis, and the AIDS Act-Up groups as they advocated for treatment and community services.
Now people are living with AIDS because they have med cocktails, and there's a lot of community service organizations.
And I asked: So what about us? Isn't it our turn now?
Btw, Andy Abrahams Wilson made a film after the UOS film on the AIDS grove in Golden Gate Park - a circular remembrance site.
Posts: 13116 | From San Francisco | Registered: May 2006
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