I feel so helpless. I've vp been taking care of my sister as much as I can for 2yrs now
She has severe arthritis and headaches from Lyme
She took WAY too many pain meds and Excedrin and in result lost a ton of weight. She had two huge ulcers that resulted into a partial gastrectomy.
She was good right after surgery but is now down to 75lbs with another ulcer.
I feel like I am watching her waste away and it kills me. She tries to eat but most days she is too weak or nauseous to eat.
I am pushing her GI doctor for a feeding tube at this point.
I just feel so lost and exhausting Posted by Lymetoo (Member # 743) on :
Wow, Amy. That is awful!!! I'm so sorry that things are so rough! Do keep pushing for the feeding tube. Sounds like it's the only way!
How is your health?
Posted by amyb (Member # 5520) on :
Thanks TuTu
I'm worried sick:(
I'm OK :/ still fighting yeast and adrenal function!
How are you?
Posted by randibear (Member # 11290) on :
My sister is on iv treatments for ra. She takes tons of steroids and vicodin.
I bet its lyme but she won't listen. Drs are gods and know everything.
Has your sister been tested?
Posted by Lymetoo (Member # 743) on :
I'm doing better, amy! Still many struggles, but the Body Ecology Diet has really helped me. Finally, some help for the gut and BODY!
Does your sister have a good Dr?
Posted by amyb (Member # 5520) on :
Her doctor is really good
She is just not one to take care of herself.
I emailed him tonight. I said we need to do feeding tube. That we are beyond the point of needing it.
She has a long way to go and a lot of issues to deal with.
They also found yeast in her esophagus which stinks because she cannot be on a yeast diet right now because she is so thin!
I am getting her dr to test her adrenal gland now as well
Posted by GretaM (Member # 40917) on :
Posted by Lymetoo (Member # 743) on :
I hope they are treating the yeast!!!
Posted by Dekrator48 (Member # 18239) on :
Saying a prayer for you and your sister!
Posted by Annie C (Member # 14) on :
I know not to take steroids. As far as my treatment none zero no steroids. For me. Others might share my point of knowing.
Posted by Anthropologista (Member # 35483) on :
Hugs, Amy. Thinking of you and your sister. I hope the feeding tube helps her. Posted by amyb (Member # 5520) on :
Finally after an ER trip and hospital admission we got TPN for my sister. I feel so much more relief )))))
Posted by Lymetoo (Member # 743) on :
Good to hear!! Now, if we could only get her WELL!!!
Posted by amyb (Member # 5520) on :
Yes - where to begin - well weight first for sure!
I know I'm not on much but it's nice to see your still a very present ANGEL Posted by colonelforbin1992 (Member # 43154) on :
I think it's awesome that you are there for your sister amy, so many families don't seem to be with lyme. Keep your head up
Posted by amyb (Member # 5520) on :
Even with TPN only at 80lbs
I do pray she can get more weight on soon
Good news is ulcer is healing so no more stomach surgery hopefully
Posted by poppy (Member # 5355) on :
You deserve a truckload of gold stars. Wish I had a sister like you.
Posted by amyb (Member # 5520) on :
![[Frown]](frown.gif)
![[group hug]](graemlins/grouphug.gif)
![[Smile]](smile.gif)
)))))