I feel so helpless. I've vp been taking care of my sister as much as I can for 2yrs now
She has severe arthritis and headaches from Lyme
She took WAY too many pain meds and Excedrin and in result lost a ton of weight. She had two huge ulcers that resulted into a partial gastrectomy.
She was good right after surgery but is now down to 75lbs with another ulcer.
I feel like I am watching her waste away and it kills me. She tries to eat but most days she is too weak or nauseous to eat.
I am pushing her GI doctor for a feeding tube at this point.
I just feel so lost and exhausting
-------------------- Good friends are like stars... You don't always see them, but you know they are always there!!! Posts: 362 | From west chester, pa | Registered: Apr 2004
| IP: Logged |
I'm OK :/ still fighting yeast and adrenal function!
How are you?
-------------------- Good friends are like stars... You don't always see them, but you know they are always there!!! Posts: 362 | From west chester, pa | Registered: Apr 2004
| IP: Logged |
randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
My sister is on iv treatments for ra. She takes tons of steroids and vicodin.
I bet its lyme but she won't listen. Drs are gods and know everything.
Has your sister been tested?
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
| IP: Logged |
I emailed him tonight. I said we need to do feeding tube. That we are beyond the point of needing it.
She has a long way to go and a lot of issues to deal with.
They also found yeast in her esophagus which stinks because she cannot be on a yeast diet right now because she is so thin!
I am getting her dr to test her adrenal gland now as well
-------------------- Good friends are like stars... You don't always see them, but you know they are always there!!! Posts: 362 | From west chester, pa | Registered: Apr 2004
| IP: Logged |
GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
| IP: Logged |
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
| IP: Logged |
Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
Saying a prayer for you and your sister!
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
| IP: Logged |
Annie C
Frequent Contributor (1K+ posts)
Member # 14
posted
I know not to take steroids. As far as my treatment none zero no steroids. For me. Others might share my point of knowing.
-------------------- May God Bless you every day. And Never say never and do not give up no matter what. We need you to help others. Posts: 1288 | From Tetons Wyoming | Registered: Oct 2000
| IP: Logged |
posted
Hugs, Amy. Thinking of you and your sister. I hope the feeding tube helps her. Posts: 431 | From New England | Registered: Dec 2011
| IP: Logged |
posted
Finally after an ER trip and hospital admission we got TPN for my sister. I feel so much more relief )))))
-------------------- Good friends are like stars... You don't always see them, but you know they are always there!!! Posts: 362 | From west chester, pa | Registered: Apr 2004
| IP: Logged |
posted
Yes - where to begin - well weight first for sure!
I know I'm not on much but it's nice to see your still a very present ANGEL
-------------------- Good friends are like stars... You don't always see them, but you know they are always there!!! Posts: 362 | From west chester, pa | Registered: Apr 2004
| IP: Logged |
Good news is ulcer is healing so no more stomach surgery hopefully
-------------------- Good friends are like stars... You don't always see them, but you know they are always there!!! Posts: 362 | From west chester, pa | Registered: Apr 2004
| IP: Logged |
poppy
Frequent Contributor (1K+ posts)
Member # 5355
posted
You deserve a truckload of gold stars. Wish I had a sister like you.
Posts: 2888 | From USA | Registered: Mar 2004
| IP: Logged |
-------------------- Good friends are like stars... You don't always see them, but you know they are always there!!! Posts: 362 | From west chester, pa | Registered: Apr 2004
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Frown]](frown.gif)
![[group hug]](graemlins/grouphug.gif)
![[Smile]](smile.gif)
)))))
Printer-friendly view of this topic