Hi guys: Happy Holidays & Happy, HEALTHY New Year! Has anyone heard anything about this new Clinic @ Hopkins for Post Lyme Disease? Read about online,,,,not sure if it's worth going to all the way from FL??? Thanks for any help!!!!, Maryc
Posted by Keebler (Member # 12673) on :
- "Post Lyme Syndrome" is a lie that Hopkins and the IDSA tries to push off instead of looking at the full picture.
I also highly recommend you do NOT go there if you suspect you have Lyme or need treatment.
Also lyme NEVER travels alone. There are coinfections to consider and Hopkins ignores all those.
You need an ILADS educated lyme literate doctor. -
Posted by Keebler (Member # 12673) on :
- The first step to becoming educated about lyme and other tick borne infections:
Topic: what do STEROIDS actually do to those with lyme? Risks, long term damage discussed. Links. -
[ 12-27-2015, 03:43 PM: Message edited by: Keebler ]
Posted by Keebler (Member # 12673) on :
- Also consider, not instead of pursuing comprehensive approach for lyme, et.al. but in addition to, so that it's easier for your body. Things here were / are a wonderful help to me:
Excitotoxins; MSG; Aspartame; & "Natural" Flavors (that are not likely natural at all).
GMO foods that destroy the GI Tract; Gluten; Dairy. -
Posted by Tincup (Member # 5829) on :
Say NO to Hopkins! Don't walk, instead RUN from there!
If he knows the facts, and we know he does, but won't admit it or treat those who are ill and suffering (a doctor's JOB), he is a Hopkins ^$##%^&&$$.
Too many people misdiagnosed with fibromyalgia, Parkinson's, ALS, depression, etc. and many others that are misdiagnosed and not treated come from Hopkins.
Posted by Keebler (Member # 12673) on :
- There is no university hospital or medical center that would treat patients that is truly ILADS educated or lyme literate or tick borne infection literate. None. They are all IDSA to the core.
Columbia Univ. is doing some research (not direct patient treatment) yet its information is rather limited and not even as fully comprehensive in what they are researching
WHY you need an ILADS "educated" or "minded" Lyme Literate doctor (whether MD or ND, or both) - starting with assessment / evaluation for lyme, OTHER tick-borne diseases, and other chronic stealth infections - and all that goes along for the ride.
Medical "models" explained here, as to differences in the ISDA & ILADS models of assessment & treatment - and exactly why it is so very important to know the differences. -
[ 12-27-2015, 05:13 PM: Message edited by: Keebler ]
Posted by poppy (Member # 5355) on :
Well, we do need legitimate research coming out of the big name institutions, so if you are willing to be a research subject that might be a place to go.
Keep in mind the distinction between a lyme clinic that treats and one that does research.