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» LymeNet Flash » Questions and Discussion » General Support » John Hopkins Center for Post Lyme

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Author Topic: John Hopkins Center for Post Lyme
maryc
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Hi guys:
Happy Holidays & Happy, HEALTHY New Year! Has anyone heard anything about this new Clinic @ Hopkins for Post Lyme Disease? Read about online,,,,not sure if it's worth going to all the way from FL??? Thanks for any help!!!!,
Maryc

Posts: 61 | From Pembroke Pines, Florida | Registered: Nov 2003  |  IP: Logged | Report this post to a Moderator
Keebler
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"Post Lyme Syndrome" is a lie that Hopkins and the IDSA tries to push off instead of looking at the full picture.

I also highly recommend you do NOT go there if you suspect you have Lyme or need treatment.

Also lyme NEVER travels alone. There are coinfections to consider and Hopkins ignores all those.

You need an ILADS educated lyme literate doctor.
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Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Keebler
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The first step to becoming educated about lyme and other tick borne infections:

www.ilads.org

ILADS


www.lymedisease.org

LymeDisease.org


Please consider all that is in these posts:

http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/133198

Burrascano Guidelines, other leading LLMDs books, and naturopathic treatment options

As many cannot get to a LLMD, posts in this set are essential to helping us figure out wise ways to help ourselves that are to the point.


Just in case any kind of steroid is suggested it's vital to know this:

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/100984?#000000

Topic: what do STEROIDS actually do to those with lyme? Risks, long term damage discussed. Links.
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[ 12-27-2015, 03:43 PM: Message edited by: Keebler ]

Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Keebler
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Also consider, not instead of pursuing comprehensive approach for lyme, et.al. but in addition to, so that it's easier for your body. Things here were / are a wonderful help to me:


http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=3;t=029690;p=0

Excitotoxins; MSG; Aspartame; & "Natural" Flavors (that are not likely natural at all).

GMO foods that destroy the GI Tract; Gluten; Dairy.
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Tincup
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Say NO to Hopkins! Don't walk, instead RUN from there!

If he knows the facts, and we know he does, but won't admit it or treat those who are ill and suffering (a doctor's JOB), he is a Hopkins ^$##%^&&$$.

Too many people misdiagnosed with fibromyalgia, Parkinson's, ALS, depression, etc. and many others that are misdiagnosed and not treated come from Hopkins.

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

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Keebler
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There is no university hospital or medical center that would treat patients that is truly ILADS educated or lyme literate or tick borne infection literate. None. They are all IDSA to the core.

Columbia Univ. is doing some research (not direct patient treatment) yet its information is rather limited and not even as fully comprehensive in what they are researching

as what one can find with an ILADS educated LLMD.


http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=013239;p=0

What is a LLMD? LL ND? What is ILADS?

WHY you need an ILADS "educated" or "minded" Lyme Literate doctor (whether MD or ND, or both) - starting with assessment / evaluation for lyme, OTHER tick-borne diseases, and other chronic stealth infections - and all that goes along for the ride.

Medical "models" explained here, as to differences in the ISDA & ILADS models of assessment & treatment - and exactly why it is so very important to know the differences.
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[ 12-27-2015, 05:13 PM: Message edited by: Keebler ]

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poppy
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Well, we do need legitimate research coming out of the big name institutions, so if you are willing to be a research subject that might be a place to go.

Keep in mind the distinction between a lyme clinic that treats and one that does research.

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