This is topic Support group topics in forum General Support at LymeNet Flash.


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Posted by lymewreck36 (Member # 4395) on :
 
What subjects are support groups covering these days? Recommended presentations?
 
Posted by Bartenderbonnie (Member # 49177) on :
 
There are thousands of on-line social media sites for the chronically ill patient. So many communities that offer insights, compassion and patient feedbacks.

Here are my favorite informative websites;

My favorite, of coarse, is Dr Richard Horowitz’s Facebook page.
He offers links to the latest in research, treatments, TBI conferences and always his unique style sense of humor.
https://www.facebook.com/drrichardhorowit

Next would be Dr Daniel Cameron’s Facebook page.
He offers case reports of patients with discussions and treatment outcomes.
https://www.facebook.com/danielcameronmd

Lyme Q & A with Dr Marty Ross on his Treat Lyme website.
A 90 minute question and answer webinar by TBI patients to the doctor.
https://www.treatlyme.net/lyme-webinar-marty-ross-md/

Lyme United by Dr Marty Ross.
This is a new endeavor which includes six different spaces for members and Dr. Ross to interact.
• Member to Member
• Ask Marty Ross, MD Live
• Office Hours with Marty Ross, MD
• Wins on Wednesdays
• Say Hello-Introduce Yourself
• Unitees Take Charge Events
https://www.treatlyme.net/lymeunited

Bartonella Babe
(Sadly, Jake Picker, creator, passed away last week leaving this community devastated. RIP Jake, we will never forget you ♥️)

https://youtube.com/@BartonellaBabe?si=7sRWApervgZqVu8y

Mild Hyperbaric Therapy @ LymeNet (Thanks to Phoiph and others)
https://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=125201;p=0

Healing Well Lyme
https://www.healingwell.com/community/default.aspx?f=30

Reddit Communities
https://www.reddit.com/r/Lyme/s/n1U8fLXlHb

Here’s a sampling of speciality support groups, in no particular order.

Global Lyme On-line and in person Lyme Support
https://www.globallymealliance.org/lyme-patient-support/support-groups/

POTS
https://www.facebook.com/groups/POTSSupportgroup/about/

Candida
https://www.facebook.com/groups/candidasupportgroup/about/

Alpha-Gel
https://alphagalinformation.org/facebook-support-groups/

Bee Venom
https://www.facebook.com/groups/398477540313310/about/

S.O.T. for Lyme, EBV & Co-infections (supportive oligonucleotide therapy
https://www.facebook.com/groups/450390065775761/about/

Babesia Blows
https://www.facebook.com/BabesiaBlows

Disulfiram for Lyme
https://www.facebook.com/disulfiramforlyme
https://www.facebook.com/groups/dsf4lyme/about/

Surviving Mold
https://www.facebook.com/survivingmolddotcom

Lyme Disease and Co-Infections
https://www.facebook.com/groups/LymeDiseaseandCoinfections/about/


This would be a great opportunity for others to join in and offer their favorite social media sites!
 


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