This year marks a major milestone for the MyLymeData patient registry-our 10th anniversary. MyLymeData is a project of LymeDisease.org. Over the past decade, MyLymeData has transformed the landscape of Lyme disease research by putting Lyme Patients at the center.
To celebrate, we're publishing the MyLymeData 2025 Research Chartbook— a visual summary of a decade of groundbreaking research, collaboration, and progress.
The chartbook transforms the individual experiences of over 19,000 patients into actionable insights. It highlights the extraordinary power of patient-driven research to impact science and promote public policy change.
MyLymeData has;
Enrolled over 19,000 participants • Collected tens of millions of data points on symptoms, treatments, and outcomes
• Contributed to multiple National Science Foundation awards, working with artificial intelligence and academic researchers
• Published eight peer-reviewed big-data studies that have been cited over 100 times by other scientific publications and in reports to Congress
Our sincere gratitude to Lorraine Johnson, JD, MBA CEO of LymeDisease.org Principal Investigator of MyLymeData 💚💚💚💚💚💚💚💚💚💚💚💚💚💚💚💚💚💚💚💚💚💚
Posted by hiker53 (Member # 6046) on :
Thanks, BB!
Posted by aklnwlf (Member # 5960) on :
Wow this looks great! I'm definitely going to check it out!