LymeNet Flash: My Lyme Data Celebrates 10 Year Anniversary!

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»	LymeNet Flash » Questions and Discussion » General Support » My Lyme Data Celebrates 10 Year Anniversary!

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Topic: My Lyme Data Celebrates 10 Year Anniversary!

Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177

posted

This year marks a major milestone for the MyLymeData patient registry-our 10th anniversary.
MyLymeData is a project of LymeDisease.org. Over the past decade, MyLymeData has transformed the landscape of Lyme disease research by putting Lyme Patients at the center.

To celebrate, we're publishing the MyLymeData 2025 Research Chartbook— a visual summary of a decade of groundbreaking research, collaboration, and progress.

The chartbook transforms the individual experiences of over 19,000 patients into actionable insights. It highlights the extraordinary power of patient-driven research to impact science and promote public policy change.

MyLymeData has;

Enrolled over 19,000 participants
• Collected tens of millions of data points on symptoms, treatments, and outcomes

• Contributed to multiple National Science Foundation awards, working with artificial intelligence and academic researchers

• Published eight peer-reviewed big-data studies that have been cited over 100 times by other scientific publications and in reports to Congress

MyLymeData 2025
https://www.lymedisease.org/assets/MLD-2025-chartbook.pdf

If you haven’t joined yet, add your Lyme disease data to MyLymeData to help find a cure for Lyme disease

https://mylymedata.org/

Our sincere gratitude to Lorraine Johnson, JD, MBA CEO of LymeDisease.org
Principal Investigator of MyLymeData
💚💚💚💚💚💚💚💚💚💚💚💚💚💚💚💚💚💚💚💚💚💚

Posts: 3217 | From Florida | Registered: Nov 2016 | IP: Logged |

hiker53
Moderator
Member # 6046

posted

Thanks, BB!

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Hiker53

"God is light. In Him there is no
darkness." 1John 1:5

Posts: 10185 | From Illinois | Registered: Aug 2004 | IP: Logged |

aklnwlf
Frequent Contributor (5K+ posts)
Member # 5960

posted

Wow this looks great! I'm definitely going to check it out!

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Do not take this as medical advice. This comment is based on opinion and personal experience only.

Alaska Lone Wolf

Posts: 6918 | From Columbus, GA | Registered: Jul 2004 | IP: Logged |

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