Just wanted to bring light to a news story I've been following for months. This could have been any one of us! A 15 year old little girl, Justina Pelletier, was being treated for a mitochondrial disorder until her parents took her to Boston Children's Hospital a year ago because she had the flu.
The hospital doctors decided that she had a psychiatric disorder instead of a medical condition and within 4 days the state took custody of Justina because her parents disagreed with her their diagnosis. She has been hospitalized with very limited (supervised) visitation from her family for a year. The only grounds for taking her away from her parents is that her symptoms were all in her head and she was being over-medicated by her parents and the other Drs who diagnosed her with the mitochondrial disorder!
How many lyme survivors were told from at least one Dr. that our symptoms were all in our heads?!?!?
I had 3 children that were diagnosed and treated for Lyme, as well as myself. I cannot even begin to imagine what I would have done if I were put in this family's shoes. I would hope and pray that people would stand up for my child before the "All-mighty doctors" let her waste away and die!!!
Please pass this on, this family cannot fight this alone!
Posted by grandmother (Member # 19908) on :
Time was, we would have demonstrated the hell out of BCH. Guess we're all too sick.