posted
Just wanted to bring light to a news story I've been following for months. This could have been any one of us! A 15 year old little girl, Justina Pelletier, was being treated for a mitochondrial disorder until her parents took her to Boston Children's Hospital a year ago because she had the flu.
The hospital doctors decided that she had a psychiatric disorder instead of a medical condition and within 4 days the state took custody of Justina because her parents disagreed with her their diagnosis. She has been hospitalized with very limited (supervised) visitation from her family for a year. The only grounds for taking her away from her parents is that her symptoms were all in her head and she was being over-medicated by her parents and the other Drs who diagnosed her with the mitochondrial disorder!
How many lyme survivors were told from at least one Dr. that our symptoms were all in our heads?!?!?
I had 3 children that were diagnosed and treated for Lyme, as well as myself. I cannot even begin to imagine what I would have done if I were put in this family's shoes. I would hope and pray that people would stand up for my child before the "All-mighty doctors" let her waste away and die!!!
Please pass this on, this family cannot fight this alone!
-------------------- No tick bite/rash sick Nov '09 diagnosed Mar '11 Doxy/Zithro LOTS of supplements
Psalm 62:5b He is my rock and my salvation. He is my defender, I WILL NOT BE DEFEATED! Posts: 127 | From Illinois | Registered: Sep 2010
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/