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» LymeNet Flash » Questions and Discussion » Off Topic » This could be any one of us!!

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Author Topic: This could be any one of us!!
elkielover80
LymeNet Contributor
Member # 28368

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Just wanted to bring light to a news story I've been following for months. This could have been any one of us! A 15 year old little girl, Justina Pelletier, was being treated for a mitochondrial disorder until her parents took her to Boston Children's Hospital a year ago because she had the flu.

The hospital doctors decided that she had a psychiatric disorder instead of a medical condition and within 4 days the state took custody of Justina because her parents disagreed with her their diagnosis. She has been hospitalized with very limited (supervised) visitation from her family for a year. The only grounds for taking her away from her parents is that her symptoms were all in her head and she was being over-medicated by her parents and the other Drs who diagnosed her with the mitochondrial disorder!

Read for yourself:
http://www.theblaze.com/stories/2014/02/18/beck-begs-listeners-to-help-family-of-15-year-old-at-the-center-of-boston-childrens-controversy-before-she-wastes-away-and-dies/

How many lyme survivors were told from at least one Dr. that our symptoms were all in our heads?!?!?

I had 3 children that were diagnosed and treated for Lyme, as well as myself. I cannot even begin to imagine what I would have done if I were put in this family's shoes. I would hope and pray that people would stand up for my child before the "All-mighty doctors" let her waste away and die!!!

Please pass this on, this family cannot fight this alone!

--------------------
No tick bite/rash
sick Nov '09
diagnosed Mar '11
Doxy/Zithro
LOTS of supplements

Psalm 62:5b He is my rock and my salvation. He is my defender, I WILL NOT BE DEFEATED!

Posts: 127 | From Illinois | Registered: Sep 2010  |  IP: Logged | Report this post to a Moderator
grandmother
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Member # 19908

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Time was, we would have demonstrated the hell out of BCH. Guess we're all too sick.
Posts: 924 | From CT | Registered: Apr 2009  |  IP: Logged | Report this post to a Moderator
   

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