Thanks,

Eyal

You will find many people have discussed this in the past on Lymenet.

Welcome to Lymenet!!

Yes, tremors are a very common symptom with this illness.

Because there are SO many symptoms that come with LD, it is always interesting to see which ones will spring up, and which ones will fade away.

Besides painful knees, I really didn't experience any arthritis until I had a traumatic lumbar tap...then, all of my little buggers moved right to that very spot, and took up residence for months on end.

Tremors were also a huge and annoying problem for me as well.

The good news is that with time and adequate treatment, both of these symptoms have faded away.

Hang in there...

And Welcome!

My best,
Melanie

I have a very fine head & voice tremor.

The rheumatologist said I had Reactive Arthritis, but I have no noticeable arthritis. I guess he based the diagnosis on x-rays of my crunchy, weak neck.

He had no interest in finding out what I was reacting to. Someone on Lymenet was checked for salmonella and strep by their rheumi. (If I remember right, I think she had salmonella.)

My head tremor is mild and no longer noticeable. I take Klonopin at night. Either the Klonopin is masking the symptoms, or it has really improved. My neck weakness has improved also.

In October, I started Amantadine 100 mg daily and really like it. It helps with dopamine in the brain and lifts depression beautifully. It's also an anti-viral.

The first day I took it, by the end of the day my internal tremoring seemed to quieten & my voice was strong. I had also just started the B12 shots.

Anyway, seratonin antidepressants never helped me; made me worse.

Amantadine also helps macrolides like Zithromax with better absorption.

Also, the first night after having taken both the Amantadine and B12 that morning, my voice got really deep for a while. But I felt a lot better & more clear headed.

LD goes after the nerves and mine were pretty fried-------so I wanted a chance to see what B12 would do for me.

Here's the article about B12 injections that made me want to pursue getting a RX for them.

http://www.mts.net/~baumel/B12.html

My diagnosis was essential tremor of the head and voice. Stress, hunger and lack of sleep make it worse. I have insomnia and severe problems with short term memory.

I was misdiagnosed from 1989-1994 with myasthenia gravis. Diagnosed with LD April of 2003. Have received 20 months of treatment.

I will be starting Minocycline for my brain, but gradually ramping up the dose. So I want to see what happens when I take this.

I've taken Klonopin for 10 years at bedtime. I take low dose Elavil for sleep or pain. But the Elavil (seratonin) is too sedating for me & it's hard to get going the next day------ but I have to sleep.

I also took Wellbutrin starting in l994 for a severe chemical depression diagnosed via brain mapping (Brain Electrical Activity Mapping or BEAM).

I don't take it now. My brain keeps changing with ABX and the Wellbutrin is just too much stimulation.

In the past for LD I've taken: 180 Rocephin injections & Flagyl; Zithromax; & Mepron.

I will probably have to repeat treatment for Babesia with Mepron as I only took 2 bottles. My Babs symptoms are gone (shortness of breath)-------for now. We'll see.

My tremor of the head went wild on a 2-hour herx of Mepron. It was taken in combination with Zith, but Zith didn't cause the increased tremoring. Then the herx just passed.

One neurologist I saw said my weak voice was just a psychiatric disorder, but at least referred me to a movement specialist disorder.

Thank goodness the movement specialist disorder did not say it was psych problem.

I was diagnosed in 1994 by Dr. J., a movement disorder specialist, in Houston at Baylor. Ten years ago, he was the best Doc to see.

My 1994 medical record states:
There are mild, low amplitude, 8-9 Hz, lateral oscillations of the head in a very slight "no-no-" fashion.

There is very slight anterocollis. There is a 1+ postural tremor at 8-9 Hz, most prominent in the wing beating position.

There is a slight truncal tremor and moderate bilateral isometric tremor in the hands.

Current exam is significant for mild lateral head tremor with slight left ptosis, mild voice tremor, and moderate isometric hand tremor.

She may be developing mild or intermittent spasmodic dysphonia; however, it is not severe enough to require treatment with botulinum toxin injections.
End of Record

Looking at these records today, these should have scared me. But I was just glad to get a diagnosis at the time.

Back then, Inderal & Mysoline were recommended. I've been on Inderal in the past, but never Mysoline.

My left eyelid drooping which they said was congenital (LOL)-----does not droop anymore after ABX.

I can still develop severe pain in the left eyelid, teeth, forehead or back of head when on ABX that go to the brain; or Mepron which goes to the brain.

Anyway, hope some of this might help.

I bet your LLMD or neurologist might have something to give you some relief.

I know if you see a neurologist you'll get another label, but LD is a long treatment process, so I always vote for anything that improves the quality of life.

Inderal has been used for years with essential tremor & you can get the generic.

Let us know how you get along.

Take Care
Jan

I want to answer your post just from my amateur research that I've done, but I need to leave.

But in the meantime, I wanted to tell you that GiGi has posted tons about this. I think her husband was diagnosed with Parkinson's. You might be interested in these.

GiGi & her husband are well and yet she still comes on the board to help us.

Here's how to do a Lymenet search:

http://flash.lymenet.org/ubb/Forum5/HTML/000464.html

I'll be back.

Welcome to Lymenet.

I do apologize for giving you a link to search with--------in my rush I didn't realize you're a new member.

I'm sure someone will visit soon and give you the Help Links Page.

If you want more responses, you can always post a new topic re: Lyme & Parkinson's Disease.

I found some links for you:

Lyme Disease Misdiagnosed as Parkinson's Disease (LINKS ONLY)

http://www.geocities.com/lymeart3/pd-links.html

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Lyme Disease Misdiagnosed as Parkinson's Disease

http://www.geocities.com/lymeart3/pd-index.html

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Melissa Kaplan has an all inclusive website.
Find the heading: Encephalopathy, Neurocognitive Impairments and Depression in Lyme

It has an article on: "Nervous System Lyme Disease"
http://www.anapsid.org/lyme/index.html

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I would take weekly glutathione IVs to detoxify my brain, but it's not within my budget.

I have heard that a neurologist, David Perlmutter, MD in Florida is seeing great success with IV Gluta for his PD patients.

I'm interested in anything with the brain so I wanted to share what I had found about him.

Here's his link:
http://www.perlhealth.com/

His new book is called: "BrainRecovery.com.
Haven't read it.

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This handout was give to me at my first support group meeting. It's extraordinary. It shows how each body system is affected by LD.

The first couple of pages are narrative, but print out the entire thing as it's in pdf file form. The chart is 30+ pages, but it's a fascinating reference piece.

Click on the link below. You'll need to scroll down the page to SYMPTOMS and click on the green indicator.

"Lyme Disease Symptoms & Characteristics"

http://www.lymeinfo.net/lymefiles.html

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Another interesting article is by the late Dr. Bleiweiss.

When to Suspect Lyme
http://cassia.org/essay.htm

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Recently, I just posted a topic on "Reduced Glutathione" you might want to glance at.

http://flash.lymenet.org/ubb/Forum1/HTML/029925.html

Because you're on meds, I wouldn't want to suggest anything that would interfere with your RX meds------just thought it might interest you.

Hope this helps.

Take Care,
Jan

Edited: To add the link.

I have had a lot of trouble with tremors and have found that Primidone taken every 4 hrs helps me a lot. If i forget a dose my body will tell me by starting to tremor.
This seems to be the only medicine that helps me and I have Neuro Lyme.

Hope this helps.