posted
I met with Dr. K. She was very compassionate and was happy to treat me for lyme. Agreed it made more sense than driving an hour to dr. P. (since I may be a high maintainance patient)
I asked her nurse if she ever sees lyme paitents get well and she said yes...all the time...and dr. K's is well loved by her patients...
Dr. K told me that the depression is most likely due to the lyme disease. Told me there are many studies from dr. fallon about this.
Said that in her experience-- length of therapy mattered more than combination or IV therapy and combos tend to exponentially increase stomach and digestive problems. Prescribes only one abx at a time.
She was on IV back in the 80's for many months and the lyme returned just as fierce after it was stopped.
I asked about pain management and she tells her patients that when a herx hits to stop all abx and wait until herx is over then when cytokines leave the body and you feel better, it's time to restart abx. Tylenol/advil for pain...
She talked about probiotics but at this point doesn't recommend vitamins/minerals.
Said it was wise to meet with a therapist for depression and meds to help with this.
Told me no special diet just healthy low carb and no alcohol.
Is putting me on Biaxin XL 2tabs in the morning--starting Monday. She likes biaxin since it gets in the cells--it helped her the most as well. (After her battle w/neurolyme in the 80's, She is doing quite well and has not had a relapse...she also thought at the time she may die too...)
Wants to see me in five weeks unless I have any problems/herxes that are too hard or whatever else. This is the good part, she is only a mile from my house and I can see her anytime I want to.
Sorry to ramble but I am so grateful to you for supporting me and I always like to know what other llmds are doing out there...
I feel a little better tonight...a bit more hopeful...
-------------------- We are spiritual beings on a human journey...
SForsgren
Frequent Contributor (1K+ posts)
Member # 7686
posted
Excellent report. Sounds like you are working with a good doctor. Best
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
Isn't it great when they give you hope? Glad you had a great visit. We look forward to the updates.
Posts: 2903 | From AZ | Registered: Feb 2006
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Ann-OH
Frequent Contributor (5K+ posts)
Member # 2020
posted
I was so glad to read this. It sounds like you have found not only a great doc, but a wonderful human being!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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trails
Frequent Contributor (1K+ posts)
Member # 1620
posted
great news for you and great report for us! Thanks for letting us know--it gives me hope!
Posts: 1950 | From New Mexico | Registered: Sep 2001
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bettyg
Unregistered
posted
Human, EUREKA...YOU'VE FOUND GOLD! a good, listening LLMD who also went thru her own lyme hell.
Best part --- 1 mile away! Oh, give me a break will you? LOL I'm just jealous; you know!
Great detailed, UPPER post; keep it up!
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