posted
Others are saying that I forget my symptoms and tell them I'm getting better. They think I'm worse.They say that when I'm feeling good that I forget feeling bad or having bad days. I do have a goldfish memory. Dr. said memory last to come back. Is that the normal experience?
Posts: 290 | From ohio | Registered: Dec 2005
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
Memory a yeah
Remember write everything down
Remember write everything down
Remember write everything down
Remember write everything down
Remember write everything down
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Do you remember what I said?
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
posted
Memory and the vision problems are the toughest symptoms to get rid of for me anyway.
Posts: 649 | From United States | Registered: Dec 2003
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I wrote a bunch of stuff down, but I can't remember where I put all those lists!
I even made a list of all my lists but I misplaced that too.
Got any advice for THAT ?
Got any advice for THAT?
Got any advice for THAT?
Hugs &
-------------------- DR. Wiseass NOT a real doc - just a real wise Posts: 792 | From USA | Registered: Jan 2005
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Boomerang
Frequent Contributor (1K+ posts)
Member # 7979
posted
Same here. Memory and cognitive thinking problems are still the worst.
Seeing some progress with the Flagyl....but it's still been so slow with my husband.
Has good days with his thinking, but then a few bad days. All too frustrating. He just can't seem to get past his brain pressure problem.
Michelle, and Heather.......how are y'all doing?
Heather, are you still progressing with the Flagyl?
Thanks....and take care..
Posts: 1366 | From Southeast | Registered: Sep 2005
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Marnie
Frequent Contributor (5K+ posts)
Member # 773
posted
Bb is after our choline..documented. This impacts cholesterol and the neurotransmitter, acetylcholine.
Into a search engine, type in the words: "acetylcholine memory".
Restore the balance to heal. Restore the missing nutrients which include choline and others:
Get your pH (potential of hydrogen) UP with the RIGHT nutrients to do this...mainly Mg, phosphorus, B1 (thiamine) and B6. SMALL doses often. Timing is critical.
Consider using lecithin to supply the choline and phosphorus...
Hydrogen is THE most important "anti-oxidant"...
To make hydrogen = mineral/glycogen + lots of acids/strong acid. Then...to carry hydrogen INTO the cells = CoQ10 which we make when we exercise IF we have the B6 and Mg nec. to make it...otherwise a very expensive supplement.
The veggies and fruits are "hydrogen bombs" so to speak. This is the basis for a veg. diet or the Bible diet. They are already "electomagnetically balanced". The only prob. with a veg. diet is B12 must be supp. (only comes from meat). However, in order to carry that hydrogen INTO the cells...enough B6 and Mg must be present to make CoQ10 when we MOVE our bottoms off the couch (when really sick, not easy to do).
Hair loss can be attributed to a thyroid prob. Mg drops -> calcium influx which does a "number" on the thyroid cells esp.
Posts: 9424 | From Sunshine State | Registered: Mar 2001
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Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
quote:Originally posted by Boomerang: Same here. Memory and cognitive thinking problems are still the worst.
Seeing some progress with the Flagyl....but it's still been so slow with my husband.
Has good days with his thinking, but then a few bad days. All too frustrating. He just can't seem to get past his brain pressure problem.
Michelle, and Heather.......how are y'all doing?
Heather, are you still progressing with the Flagyl?
Thanks....and take care..
Boom, so sorry to hear hubby is still having bad head days. Wish I could say some helpful but my head is presently in a vise grip of its own. Doc subtracted Biaxin XL so I could get back to taking Relpax when needed.
Will keep a good thought for hubby for better head days!
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
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Hubby has improved the most with memory and cognitive issues -- not back to normal but the best he has been in 5 years.
The G.I.(nausea/vomiting/dry heaves) and neuromuscular (tremors/myoclonus/seizure-like episodes) have been the slowest to respond to treatment. These issues have been the primary symptoms from the start.
I have always felt that the high levels of antioxidants he took from an early point in his illness (way before actual diagnosis) were the primary reason he never seemed to have the same level of brain fog many on this board report.
This includes COQ10 400mg minimum, IV Vitamin C (25 grams 1 or 2 times weekly) last 3 years and IV Glutathione 500 - 1000 mg about 5 times weekly for last 3 years and most recently added in Resveratrol among other things.
Also fewer headaches than many report -- takes Vitamin E, gingko, vinpocetine, heparin etc to help with bloodflow.
Until treatment started he had no actual pain except occasional G.I. pain. Especially since trying to treat Babesia pain is more of an issue.
The IV phosphatidylcholine from the Kane protocol did not seem to noticeably improve cognition but had more of a dramatic impact on neuromuscular symptoms but not a sustained and lasting effect.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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