posted
I am new to site and new to lyme. I have enjoyed lurking and knowing that I am not alone. I look forward to posting and sharing from all of you. This is very scary to me. I am in my third week of treatment and feel way worse than before I knew. Oh well, sounds like the norm.
Posts: 25 | From Lancaster PA | Registered: Aug 2006
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
Welcome. I hope you find help here and always feel free to post questions.
-Aniek
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
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Carol B
Unregistered
posted
Well Hello! Thanks for introducing yourself. I am impressed that you waited three weeks to post. I remember being so completely freaked out when I was first diagnosed, for the second time, if that makes sense, I posted right away- and haven't stopped !
But at least I am not as freaked out-still freaky-but not freaked out.
And I live right down the road from you-we're practically neighbors-
And just to give you something to look forward to I would like to invite you to my surprise birthday party on lymenet which will be happening sometime soon !
just don
Frequent Contributor (1K+ posts)
Member # 1129
posted
Hi Avon, Welcome here, altho I wish it wasnt so!! Hurry up an get well so as to enjoy THIS site!!!
Carol, I wanted to come to yur s'a'prise party but alas I cant cause,,, TuTu just banned me from the site!!! (boo-hoo)(if in doubt read above!!) I am not a herxer or a reactor or anything, most I can tell!!! I cant even log back in to saturdey nite chat after getting 'booted out' right. I am gonna go cry,,,then go eat worms!!!Cuz I B --just don--
-------------------- just don Posts: 4548 | From Middle of midwest | Registered: May 2001
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posted
Avon, I just wanted to say Hello and welcome, and let you know you are not the only one new to this. I only been around for 30 days or so. I am learning as I go! I hope you are able to find a great support system here! Posts: 51 | From Des Moines, Iowa | Registered: Jul 2006
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Carol B
Unregistered
posted
Just Don- Lymetutu's just jealous-you can come to my party-and cry if you want to,too ! Back at ya-I've got a teener begging for the computer.
lymemomtooo
Frequent Contributor (1K+ posts)
Member # 5396
posted
Welcome Avon..Interesting name you have..This site is definitely a life saver..Just be patient with getting all of the answers immediately..
I'm just across the river from you..
Well, not sure that is even possible..But with researching and asking questions, you should receive a lot of good support.
There is also a search feature at the top of Medical and General Support..You can get access to many old posts that way. Click on it and put a topic in the form..
Also be prepared for lyme rages..Even some of the best here have bad days..And they may not mean to scare you..They are all good down deep..And will help..Especially do not let Don or Carol scare you..They are harmless...
And I know when the party is Don and you can come..lymemomtooo
Posts: 2360 | From SE PA | Registered: Mar 2004
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posted
Thanks so much for the welcome and thoughts. I waited a few weeks, because I usually check out the site and the content to see if I like it or not. That did not mean that I have not looked at everything I could click on, to educate myself on this crappy thing.....Someone had asked what treatment I am on. I am on my 4th week of doxy. I have an appointment to have an echocardiagram done and my family doc suggests that I see an infectious disease doc. My opinion of this whole thing is that I have had Lyme in the past and it went undiagnosed. This time it was only a few weeks since exposure and I tested postive.?? Sounds like that is not the norm, to test positive so soon?? I am learning a lot..... Thanks again for replying
Posts: 25 | From Lancaster PA | Registered: Aug 2006
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Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
Actually, its more common to test positive after a recent exposure. People with later term Lyme create less antibodies.
But it's always good to have that positive test of proof of infection.
I would recommend posting in the seeking doctor forum for an LLMD (lyme literate medical doctor). If you think you've had lyme for a while and were just reinfected, then you need a doctor who really understands and has experience with Lyme.
As you may have read here, a lot of infectious disease doctors don't treat Lyme aggressively enough.
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
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posted
ID ducks are the absolute worst when it comes to Lyme. Beware.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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just don
Frequent Contributor (1K+ posts)
Member # 1129
posted
Please Avon realtor, What a combination of two names!! I remeber those Avon perfumes my mom and grandmother used to use oh so many years ago.
And Realtor, special memeories abound here too!!
What I posted to say IS if you possiblely can,,,"STAY AWAY" from the quack,quack duckies in infectous disease suits. THAT can only lead you to more trouble than YOU even want to think about!!! He is going to say you DONT have LYME!!! Doctors of all kinds write things down in their files. Insurance and everybody else that shouldnt, review the doctors files. Him saying that could lead you to treatment denial or at least a reduction in approved treatment payments,,,which ten LLMD's cant undo!!!
Get a real strong case of de-NILE and swim, float,paddle,fly, or RUN to a GOOD LLMD and get treated and be done with it!!! No denails, no further unneeded problems, just herx,learn, treat, learn some more,, and treat whats wrong and sing a NEW song of joy when you turn the last corner of this terrible affliction!!! But to turn the last one, you must start with a single step towards the FIRST corner, getting the 'right' treatment by the 'right' LLMD!!!
Get crackin on it, times a wastin!!!!!!!!!!!And dis the infectous duck!!Mostly cause I am still--just don--
-------------------- just don Posts: 4548 | From Middle of midwest | Registered: May 2001
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posted
Just Don, Thanks for the advise. It seems to be a common theme amoung those posting at this site. I did post and ask for a suggestions of docs in my area. I am not one to sit back and not take charge of my own care. My daughter has had 4 open heart surgeries and though my experience with her, I have learned a lot. the only reason I have a confirmation of lyme today, is bacause, I went for blood work and then got the order for the lyme test. When I went to the family doc, he really did not think I was going to have a positive test. He called me on a Sat. morning to get started on the meds. I think that he suggested the ID just to get me off his back..... Thanks again, I will proceed with caution. OH, I am just having an echo. No cardiologist will get involved unless there is some damage or concern, and believe me, I will take charge of the choice of that doc.
Posts: 25 | From Lancaster PA | Registered: Aug 2006
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