posted
Are they sure it is Lupus. Lupus is rare and in men it is even more rare. Lyme can cause elevated ana numbers as well as a malar rash. Ask how many people were first diagnosised with Lupus because of these symptoms. In the immortal words of Dr. House "its almost never lupus."
Posts: 649 | From United States | Registered: Dec 2003
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posted
Sounds fairly lymey to me -- a number of us get a butterfly-type rash and elevated ana that resolves with treatment. Also, seems "mono" triggered lyme in lots of us -- sheesh, poor guy!
Lupus, from what I understand, is a somewhat poorly understood condition.... and lyme can certainly mimic it.
-------------------- "Looks like freedom but it feels like death.. It's something in between, I guess"
Leonard Cohen, from the song "Closing Time" Posts: 822 | From California | Registered: Jan 2006
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bettyg
Unregistered
posted
3 times dx w/lupus; no treatment or meds ever given. 1 doc told me it was lupus and walked out door without explaining what lupus was!
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posted
I believe the lupus diagnosis. Lupus often attacks the kidneys. I have taken care of many people who were on dialysis because of kidney failure related to lupus. I've never heard of lyme causing kidney failure except for maybe related to the long-term use of antibiotics. Some are very hard on the kidneys.
Posts: 340 | From Ohio | Registered: Oct 2005
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stymielymie
Frequent Contributor (1K+ posts)
Member # 10044
posted
probably not lupus. lupus in young men is almost zero, doesn't happen.
lupus is a disease of women 9-1 and usually occurs after 30.
it could be any number of other autoimmune diseases. i get the malar rash, dry eyes ,mouth,nose and sweat glands and have secondary sjorgren's due to autoimmune problems with lyme.
even sjorgren's is rare among men especially young.
a bad case of mono could cause kidney dammage on its own, also many other things unrelated could be the cause of kidney problems.
everything in the world can be explained by lyme disease, but does not mean everybody with strange symptoms has lyme disease.
there are many other disease that can mimic every symptom of lyme, so diagnosis is very important to narrow down treatment.
today , however, the disease is taking second place to the treatment, since many diseases once treated incorrectly with steroids or other means is now taking the same treatment approach as lyme.
lupus was originally treated with steroids,but nobody ever got better, now they used the lyme regime.
they even think many cancers may be triggered by viruses or bacteria.
docdave
[ 10. February 2007, 07:30 PM: Message edited by: stymielymie ]
Posts: 1820 | From Boone and Southport, NC | Registered: Sep 2006
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posted
Member in our support group said she had the butterfly rash...was diagnosed with lupus...later diagnosed with lyme and has recovered with antibiotic treatment...
-------------------- �Pride is concerned with who is right. Humility is concerned with what is right.� - Ezre Taft Benson Posts: 655 | From NC, Exit 88 on the Deer SuperHighway | Registered: Dec 2004
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posted
Many people and many doctors make the mistake of assuming the butterfly rash is unique to Lupus. There are many things that cause the butterfly rash including Lyme.
posted
3 times dx w/lupus BUT NO KIDNEY PROBLEMS WHATSOEVER! in all these years...fyi only.
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
I don't know.... they KEPT wanting to diagnose ME with lupus when I was 20!!!! Kept saying, "If you had positive ANA you WOULD have a lupus diagnosis." and they KEPT testing me OVER AND OVER AND OVER but thank god wasn't positive!!! ANd then my "suspected lupus" went away with oral abx!!!!!!!!!
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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posted
I saw that show too. I didn't see the beginning of it, and when I first started watching I thought they were talking about Lyme.
My son had mono too, and they have him an antibiotic to cover any secondary infections he might have. With a week of bed rest he was fine.
Kathy
-------------------- You never know how strong you are until being strong is the only choice you have. Posts: 807 | From South Dakota | Registered: Jul 2005
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Annie C
Frequent Contributor (1K+ posts)
Member # 14
posted
I read that on Lupus Deaths and with an autopsy
was found that Lupus is form of a spirochete's
bacteria HUH? I am so excited about the fact
that the FDA CDC and Gov. is going to allow "The
Q-RiBb test" which has over a 90% accuracy. Also
all the so called don't know why diseases ALS
CFS FYBRO etc... it will be available in about 3
mo. Because LYME is at an epidemic proportions,
Reason being it is GLOBAL.
Also my Kidneys are now in the picture, lots of
blood, pain, 3 trip to ER I still don't know what
is causing this.
Hugs to All
-------------------- May God Bless you every day. And Never say never and do not give up no matter what. We need you to help others. Posts: 1288 | From Tetons Wyoming | Registered: Oct 2000
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posted
"Autoimmunity" What causes it? Probably any number of things--genetic predisposition, environmental triggers, infection.
It's one of the big unknowns in medicine. How can something be treated when the cause is so elusive? SOMETHING makes the body turn against itself.
Are there a certain numer of cases that occur only because the person is a ticking time bomb? How many are due to a cause, and finding it could stop the autoimmune response?
Posts: 353 | From Florida boonies | Registered: Nov 2005
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luvs2ride
Frequent Contributor (1K+ posts)
Member # 8090
posted
I have Lyme/RA and have recently exhibited enough symptoms of Lupus to prompt me to find a new Rheumie who believes in an infectious cause of RA. That visit comes up 2/28 and mainly I want him to address whether or not the mino I am taking could be the culprit. It is known that mino can induce Lupus.
My symptoms are scalp and facial rash and significant hair loss after exposure to sun . This actual happened several months ago.
I soaked my scalp in a garlic/coconut oil recipe and the rash disappeared immediately, but the garlic smell lingered for 1 week. Pheweee.
Then I began to wear a hat and gloves when riding my horses.
At the time, I had ramped up my mino from 100mg MWF to 150mg with a goal of reaching 200mg. At my doctor's suggestion, I had also added 400IU Vit D3 to my supplements. I had been taking DHEA 20mg daily for many months prior to this event.
I backed the mino down immediately, stopped the D3. Much later (just 2 weeks ago) I quit the DHEA as it can cause hair loss in women.
My hair did not fall out in big chunks. It fell out normal but did not grow back. I have always had ridiculously thick hair (thank God) that grew rapidly. Well, I just canceled my standard 5 week haircut and that was 2 weeks ago. There was no hair growth whatsoever. I have gray hair that is colored and would be able to see the new growth very easily. This week I am finally starting to see a little gray so I hope the steps I have taken are helping.
Hopefully, no Lupus, but need to rule it out. As far as autoimmune, I don't buy it. I don't believe my immune system has run amuck. I believe it has been very sick and has been gallantly fighting the battle of my life.
I do believe infection is the cause and remains the cause. I work with doctors who feel the same way and give me hope of a cure. No promises, of course. RA is a mean condition.
As long as we keep my liver supported and detoxing, I live a pretty much painfree life. I tried to slack off of the number of injections due to the cost and the distance I have to travel and I got into trouble quick fast.
Just 2 weeks ago, I began seeing an Osteopath (D.O.) in addition to my marvelous integrative doctor and I am having great response to his treatment.
He is my hubby's doctor and kept telling my hubby he has really good results with RA. Finally, I went to see him and see what he could do.
Basically, D.O.'s are concerned with the muscular/skeletal, the central nervous and the circulatory systems. He is trained to find blockages caused by mis-alignment. Fix the alignment and open the flow of fluid systems in the body and then the body can heal itself.
This would be consistent with my other doctor who is also trying to improve my flow to detoxify my very toxic body. That doctor works by injecting glutathione and lipostabil which promotes the liver functions.
It is not amazing to me to find out from the D.O. just how out of line I am. Afterall, I "Luvs2ride" horses. They are big animals and can knock you around pretty good.
I am just amazed at how quickly I am responding to his treatments. He said when the fluids are blocked, muscular/skeletal issues result.
Amazing, amazing, amazing. And, it has no toxic side effects. It does the body good only.
Luvs
-------------------- When the Power of Love overcomes the Love of Power, there will be Peace. Posts: 3038 | From america | Registered: Oct 2005
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