posted
My LLMD has yet to rec'v the grant money for the medical study I was supposed to be in starting in June. I'm getting a little anxious because I'm stage 3, and my brain is going haywire.
But my insurance, of course, will not paying for my LLMD's suggested course of treatment. Because... Kaiser Permanente says I don't have Lyme (Chonic or no). So I am kind of dependent on the medical study (they pay).
-------------------- When you reach your "wits-end" remember this: "Peace I leave with you, my peace I give you. I do not give as the world gives. Do not let your hearts be troubled and do not be afraid." John 14:27 Posts: 397 | From Loudoun County Virginia | Registered: Mar 2007
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Vermont_Lymie
Frequent Contributor (1K+ posts)
Member # 9780
posted
Sorry to hear about Kaiser and your situation.
A couple of questions to consider:
Can you fight Kaiser's decision? Chronic lyme is a clinical diagnosis, and they should at least reimburse you for part of the treatment.
Can you afford to start treatment without Kaiser's coverage?
What you should do depends on your conversation with your llmd.
In my experience, grant funds (from the fed govt?) may be held up for months at a time. Your llmd might not be able to say for sure when the funds will come through.
Given your symptoms, I would want to start to treat if I were in your shoes, without open-ended waiting.
Best wishes, and I hope these thoughts help even a little bit.
Posts: 2557 | From home | Registered: Aug 2006
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bettyg
Unregistered
posted
ew, i'd edit my title, click on PENCIL and then change this to:
grant money for the medical study NOT received; help!
click edit send when done.
now, everyone knows more what this is about; anyone with grant money experience will jump in and read your post. good luck.
GET TREATMENT NOW! find your pot of gold.
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posted
On what specific grounds did they deny your treatment? just curious if they referred to a lab test or what?
did you try to appeal this decision with supporting documents from the CDC stating that Lyme is a clinical diagnosis?
Do you know what the hold up is over the grant money? I wouldn't participate in the grant research project unless they provide something in writing saying you would not be financially responsible.
Posts: 339 | From nowhere | Registered: May 2007
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posted
My duck (Kaiser) doesn't believe in "Chronic Lyme" and the test they did for Lyme came back neg. by CDC standards. He only goes by CDC standards. He also thinks that a months corse of abx of 200mg (no more!) per day will kill it.
He dgx me as fibro, CF and Dysautonomia (the Dys is correct). I then went to an LLMD that all of my Lymie friends see, he did a series of labs (IGenX) that said I was IgG neg, but IgM positive. I had three bands and a ton of symptoms. I've probably had this for years.
No money, so I need this study.
-------------------- When you reach your "wits-end" remember this: "Peace I leave with you, my peace I give you. I do not give as the world gives. Do not let your hearts be troubled and do not be afraid." John 14:27 Posts: 397 | From Loudoun County Virginia | Registered: Mar 2007
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lymednva
Frequent Contributor (1K+ posts)
Member # 9098
posted
I would email your LLMD (he's mine, too) and ask him what he suggests you do. That way you can cancel your appointment if he can't do anything, or reschedule it for a later date when the grant may be there.
You need to go the the practice website (Google it to find it) and set up an account, if you haven't already done so. Then you can email him and he'll get back to you quickly. You know how he is with computers, It's his preferred method of communication.
Good luck! I hope this gets straightened out soon!
-------------------- Lymednva Posts: 2407 | From over the river and through the woods | Registered: Apr 2006
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